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Timothy 108k!

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15 years 6 months ago #2360 by lucidawn
Timothy 108k! was created by lucidawn
Believe it! What else can be said. He will stay on the same dose of Nplate this week. No side effects and tolerating the weekly injections quite well.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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15 years 6 months ago #2363 by alisonp
Replied by alisonp on topic Re:Timothy 108k!
Wow, thats brilliant - 3 digits!!!!! It sounds like an oxymoron - Tim, 108K!!

Hope that he is going to spend the weekend doing things thatare usually forbidden such as visiting theme parks, judo, karate, etc. That and doing his homework of course!

Ali :)
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15 years 6 months ago #2379 by dbishop
Replied by dbishop on topic Re:Timothy 108k!
WOW!!!! So Great to hear!!!!
Mommy to Devyn 3 years old
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15 years 6 months ago #2380 by lucidawn
Replied by lucidawn on topic Re:Timothy 108k!
Tim said, "I'm an oxymoron..." lol.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
More
15 years 6 months ago #2393 by ddunn
Replied by ddunn on topic Re: Timothy 108k!
Fantastic!!!!!!! This is just wonderful.
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15 years 6 months ago #2407 by juliannesmom
Replied by juliannesmom on topic Re:Timothy 108k!
Hurray! Enjoy it and use it!
Norma
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15 years 6 months ago #2408 by alisonp
Replied by alisonp on topic Re:Timothy 108k!
Better an oxymoron than a moron I guess!
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15 years 6 months ago #2411 by xray001
Replied by xray001 on topic Re:Timothy 108k!
OMG - this is great news. I never thought that I would see a post where Tim had a count of over 50, never mind having one that is over 100. How wonderful for you.

I am so glad to hear that things are working well with the NPlate, and no side effects. Hooray.

Michelle - mom to Danica
Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594
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15 years 6 months ago #2423 by lucidawn
Replied by lucidawn on topic Re:Timothy 108k!
Thanks everyone. I guess I think that things always have to look up eventually, so I knew it would happen, it was just a question of how long. I'm hoping maybe this will give his body time and a chance to recover a bit and find a remission. IDK, since he's not responded to other meds, I wonder how much of his ITP is a function of his bone marrow not producing enough platelets. I'm hoping he can maybe come out of the destruction/production conundrum.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 6 months ago #2444 by Angel85
Replied by Angel85 on topic Re:Timothy 108k!
Wow, thats fantastic, good to know something is working for him. Hope they stay up high for him.
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15 years 6 months ago #2449 by xray001
Replied by xray001 on topic Re:Timothy 108k!
Donna - you mentioned bone marrow - I assumed that Tim has had a bone marrow test in the past ??? If not, it is worth getting it. If there is a problem in the bone marrow, then other things need to be looked at. (I am sure that you know all this, so I won't continue).

I hope things continue to imrove!!!!

Michelle
Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594
Moderators: jaycharness
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