He got a small boost form the steroids. At only 9k, his doc won't up the nplate yet. I asked about the antibody test for NPlate and he said he doesn't think its commercially available, but its a good idea and he's gonna contact Amgen about trying to get it. He also wants to do a BM after testing for the antibody.
On bright news, I got a new job that will provide insurance, finally, for my sick boys! That means I will be able to choose a doctor for them rather than take what is given. It may be a few months though, I don't know the waiting period for new insurance.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).
Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
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