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6 years and finally a "normal count"

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13 years 7 months ago #22509 by astahl
6 years and finally a "normal count" was created by astahl
Hi everyone - It has been literally years since I was on this site. But I thought I would post on our experience. My son, Josh, was diagnosed at age 5 with ITP. His counts were under 10K for about a year, then slowly (and I mean slowly) rose on their own. At age 1l, last fall, he got his first count of 150K and was released from seeing the hematologist annually.
We never treated as we had drs. that took a "European" view of ITP (Phoenix Children's) and Josh was not a bleeder. At times I thought he would never have a normal count. Life went on and I fell away from the discussion boards..but I thought I would post for those of you that have been newly diagosed as chronic. We will are to keep a eye out for unusual bruising, but so far so good! :)

Amy
The following user(s) said Thank You: crystal lee
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13 years 7 months ago #22546 by marydhondt
Replied by marydhondt on topic Re: 6 years and finally a "normal count"
Amy what were Josh's counts like in the intervening period, were there fluctuations or did they only climb during the 6 years?
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13 years 7 months ago #22547 by astahl
Replied by astahl on topic Re: 6 years and finally a "normal count"
His counts are as follows -
In May I noticed he had a golf size lymph node on his neck and I took him to dr. That is why we were fortunate enough to have counts done in May. I believe it is the virus (or whatever he had that caused the swollen lymph nodes) is what triggered ITP.

5/30/06 397 K
5/31/06 408 K
6/26/06 12 K
6/28/06 12 K
7/05/06 10 K
7/11/06 2 K
7/13/06 5 K
7/20/06 2 K
8/3/06 2 K
8/17/06 1 K
8/30/06 1 K
9/18/06 6 K
10/17/06 9 K
11/21/06 15 K
12/20/06 11 K
2/28/07 27 K
4/10/07 78 K
6/12/07 33 K (I remember this appt as it was like a punch in the stomach to see a drop again)
8/7/07 50 K
10/16/07 74 K
3/5/08 38 K
3/17/08 144 K
8/5/08 118 K 6th month checkup at Hematologist
8/24/09 136 K Annual visit to hematologist
7/15/10 135 K (Last Phoenix Visit)
7/22/11 200 K (First Duke Visit - released from annual Hematologit visits unless we notice changes)
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13 years 7 months ago #22548 by astahl
Replied by astahl on topic Re: 6 years and finally a "normal count"
I guess his counts were not under 10K a year (but it sure felt like a year!!)
The following user(s) said Thank You: marydhondt
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13 years 7 months ago #22553 by marydhondt
Replied by marydhondt on topic Re: 6 years and finally a "normal count"
Thank you for the detailed counts.
Delighted for Josh and family that he is doing so well, it is good to see a success story for chronic ITP,
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12 years 6 months ago #31673 by crystal lee
Replied by crystal lee on topic 6 years and finally a "normal count"
I go back and read this post often, this is one of the most encouraging post I can find...
The following user(s) said Thank You: Amin Shamji
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12 years 6 months ago #31825 by firkins
Replied by firkins on topic 6 years and finally a "normal count"
really encouraging thread. thanks for sharing -- and Congrats!
Firkins (mom of Zoe (15) and Mia (13). Mia has ITP. Diagnosed 3/2012.
Moderators: jaycharness
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