He did very well from the end of July until now...a partial remission where his platelets were riding around 100k with no treatment. I thought it could last a little longer, and it might have but he has hit his head pretty hard three times this month-once falling off a skate board, another time got in a fight with his brother (why do teen boys fight to kill?!), and then yesterday he was in a car accident with a friend and hit his head. CT scan says no bleeding, but his platelets are at 19k as of yesterday. We are going in today to check again and likely get nplate...we'll see if he miraculously came up from that count. Five months of decent counts...although we have not had him checked since October-just been watching for symptoms.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).
Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
