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ITP with Virus only

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13 years 10 months ago - 13 years 10 months ago #19566 by sadiemay
ITP with Virus only was created by sadiemay
Hi everyone. I haven't been on this site in about three years. My son has ITP and has only been affected when fighting a virus. We had many episodes for about a year and a half, then it stopped. We thought he'd outgrown it, but last month it came back when he got a cold. His platelets get low, in the low teens and twenties, then return to normal when he starts feeling better from the illness. So, my question is...does anyone else experience ITP in this way? It seems like many children are experiencing long term low platelets that need treatments etc. I just wonder how many people are in the same situation as my son is.

Thanks!
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13 years 10 months ago #19569 by alisonp
Replied by alisonp on topic Re: ITP with Virus only
There are definitely some other kids/adults like your son but I can't remember the names. It must be reassuring to know that the problem usually goes away with the virus. For what its worth, my son seems to have the opposite reaction to a virus - it usually brings his counts up a bit!
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13 years 10 months ago #19572 by kprather
Replied by kprather on topic Re: ITP with Virus only
My son is the same. He normally fluctuates around 80 - 170 normally. But a virus will drop him into single digits. We give him a quick pulse of Decadron and he comes back up until the next virus. We have been through this 3 times in the past 7 years now. Last time we got a 3 year remission. We are now coming up on a 1 year remission but the flu season is upon us.
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13 years 10 months ago #20199 by cpo5
Replied by cpo5 on topic Re: ITP with Virus only
How long does your son have to be on Decadron before his counts come back up?
This is the stuff that drives me crazy
This is the stuff that's getting to me lately
In the middle of my littleness
I forget how big I am blessed
This is the stuff that gets under my skin
But I gotta trust You know exactly what you're doing
It might not be what I would choose
But this is the stuff...
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13 years 9 months ago #20330 by kprather
Replied by kprather on topic Re: ITP with Virus only
We put him on a 4 day high dosage. Go in the next week for a test and he is normally in the 200's. He then settles down to his normal 80-170ish over the next couple of months. UNTIL THE NEXT VIRUS HITS. But what is really interesting is that he can be sick and not show any signs for up to 2 weeks.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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