My son has had ITP for almost 4 months now, his counts have pretty much always been below 5, unless treated than still only up to 24. We have done prednisone, win rho and IVIG we have done about 8 rounds of IVIG.. The last time we did it, we left hospital at 10, and 5 days later he was at 24, which has never ever happened, however 3 days later we went for a 2nd opinion and they suggested we could try 6mp. She told me to do research on it and if I decided to try it have my dr call her. I am scared of this medicine, my baby is happy healthy just no platelets...I am sooo very scared that he has been sooo low for so long, but I am just (if not a little more) scared of this treatment. His ped doesn't wanna try IVIG again, saying that the more he gets it more likely he is to have a reaction?? His hemo suggested trying it again, since we saw a better outcome, but his ped seems to be pushing the 6mp more because as I just said tey are not comfortable with more IVIG. At this moment until I make a decision we treat with prednisone when his mouth breaks out to stop the bleeding (which I am also afraid of too often) If anyone has any suggestions, some days I feel best with no treatment but I am afraid that is wrong choice and I will keep my baby at high risk.. Sorry so long, I am lost, scared and afraid whatever choice I make will hurt my baby
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