Platelet Disorder Support Association

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Caitlin

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14 years 4 months ago #15684 by tacmom
Caitlin was created by tacmom
Nothing new to really post, but she is still doing well! Her count two weeks ago was 141, still on the minimum dose of 1 mcg/kg. :) We're in our last week of school/work and then we head off for a cruise with my husband's family in Alaska! Looking forward to it, but I hope I am not too tired to enjoy the trip!

Caitlin's hematologist moved so we lost a great hematologist. We are going to really miss her! We are also losing the study coordinator for the drug Caitlin is on so it is going to feel weird at our next few visits. At least the person taking over for Caitlin's hematologist is also an ITP specialist and a well-known one in our region. We've met him a few times and he is the one who got us on board to this study when we were looking into splenectomy.

I hope everyone's ITP kids are doing well!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 4 months ago #15795 by Sandi
Replied by Sandi on topic Re: Caitlin
Sooooo glad to hear it, Pauline!
Moderators: jaycharness
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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