He went from 7k on Monday to 90k today with IVIg. That's the biggest rise he's gotten from IVIg in years. Again,I attribute his "improvement" to the Rituxan, though it doesn't seem to have helped him (with higher counts on its own). He got 74 mc today (one per kilo) of Nplate.
He got so sick from the IVIg this time, like the first time he had it. Fever, severe migraine, nausea and vomiting. I finally went out and bought him some caffeine pills because his insurance is not quite processed in our new state, so I couldn't get him any hydrocodone. The caffeine helped a lot and he's feeling much better today.
One really cool thing about Children's Mercy in KC, is that they treat your kid regardless of whether you can pay or not. NPlate is incredibly expensive, as is IVIg, but they did not say one thing about him not being insured right now. They treated him with no questions or signed papers (the kind that say I am financially responsible for treatment). I think that's pretty amazing.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).
Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
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