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Timothy's counts today

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14 years 5 months ago - 14 years 5 months ago #14742 by lucidawn
Timothy's counts today was created by lucidawn
Well, I dreamt last night that he had HUGE contusions all over him like softballs had hit him. I also dreamt he hit his head and we were concerned he might have bleeding. So I thought he might be a little low. And, yes, he's a little low, but not too bad. 80k after I think five weeks of no NPlate. So he got a shot today to boost him back up and we come back next week before we move. I thought he'd not get it though, cause 80k is pretty safe, but I think the hemonc just knows Tim can drop in a day to zero, literally. He's very careful with him, and I'm very glad of that.

So one more appointment with this doctor and we MOVE to a new city, and new region, and new hosptial! A little scary when it comes to the care Tim will receive, and my other son, but I'm sure it will be fine.

80k...not too bad after five weeks and the drug completely out of his system!

As a P.S. he's going to a friends house for the weekend, so I gave him the warning of remember your count and don't hit your head, lol. I think we have these dreams for a reason...God makes us the voice of his guardian angles, lol.

Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...
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14 years 5 months ago #14768 by alisonp
Replied by alisonp on topic Re: Timothy's counts today
Donna,

I am so pleased I don't have dreams like that - I would be wandering around in a constant state of fright. 80K isn't bad is it, but I hope it doesn't continue dropping. Just wanted to say that I hope the move goes well anyway.

Ali
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14 years 5 months ago #14778 by tacmom
Replied by tacmom on topic Re: Timothy's counts today
Hopefully the shot will bring him up for a while. It would be nice if it takes 6-8 weeks to drop down below 50 after an injection, but I know that's wishful thinking! Have you already had a referral to a hematologist in the area you are moving to? Good luck with everything!

Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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