Timothy...3 weeks and no nplate

Amazing, isn't it? When I told our hemonc we were moving about six weeks ago, he decided to try to get him off nplate since his dose has been so low (1mcg/kilo). So, its been three weeks and his counts are 173k! Hemonc says the med is out of his system. So we are going to do one more count before we move, next week, and hopefully he'll stay up.

We are moving to Kansas City Missouri! Exciting for me, scary for the kids. But we've just about maxed out in Charlotte (NC). READY for something new and exciting!

Hope everyone else is doing well!

That is such great news Donna - paaaarrrrtttty!!!! Seriously, it gives me a lot of hope that it CAN happen. I really hope that next week's count is equally good, and then you could just move and leave ITP behind in Charlotte.

You sound like you are really looking forward to the move. Is it far? Do you know people in the new place? I love moving myself, but my kids absolutely hate it. We've lived in the same place for the last 9 years, and I feel like I am at least 4-5 years past my moving time. I've never lived in one house or one town for as long before in my life. But my husband lived in the same house from birth to when he left home as an adult, so he's got a lot of sympathy with the kids.

All the for next week and for the move generally, Ali

Ali,
Thanks, yeah I'm hoping so, and believe he will be in good shape for the move. I know that its very likely only a temporary thing, a remission. For him they seem to last about a year or less. Maybe the Rituxan will change that (though his hemonc seems to think otherwise).

I am looking forward to the move-its LONG over due, but my kids are not really looking forward to it. We move alot, but this time were here for 11 years! We are moving 15 hours away from where we are now, and yes we have lots of friends there that moved from this area about two years ago...several families. I can't wait...I'm stoked!

For Tim it will be great to get him away from the horrible influences he's been around lately. I'm hoping he makes a better start this time.

I'm glad Dougie is looking up. I understand your views on not treating, and also the doctors views on treating him maybe needing it. Tim is Sooooo active and a risk taker, so I have always wanted him treated. Last drop, the week he dropped to 1k (and knew it) he spent the night at a friends house. Well, I saw pictures on his facebook of him doing flips off a dumpster! Boys!

That's amazing!! Glad his counts are still normal after stopping the drug! I've read about some cases where people get Nplate only as needed. I wish that was the protocol for everyone! It'd be nice to just get a shot of Nplate instead of IVIG to keep platelet counts 50 or higher! Then the risks of the bone marrow changes aren't as high. Good luck on the move! It's awesome that you are moving somewhere where you will know some other people! Hope the kids end up loving it there!

Ali...I'm also a fan of treatment due to the dangers that Caitlin puts herself into everyday. If I could get her to be compliant with the dr's requests, I wouldn't treat. My thoughts are if Caitlin were to have a head injury, at least her counts are high enough to help prevent a catastrophic head bleed that the drs couldn't stop. But on the other hand, I think I have only really heard about one sports-related death due to low platelets and this was my dr's patient. My dr's patient was 11 and died due to a head injury after playing a competitive game of soccer . This is why our dr is firm on either treating or following the no-contact sports risk below counts of 30. We did about 8 months of no treatment until Caitlin had her first real injury.

Wow, that is wonderful news, i hope his counts continue to stay high for a very long time

OMG -- I am so happy for you that Timothy is doing so great. When I first started reading your posts a couple of years ago - he was always at 1 or 2. Who would have thought this, eh? Incredible.