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Charlotte after a year

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14 years 6 months ago #13798 by jrosenfe
Charlotte after a year was created by jrosenfe
Well on March 11th we hit the year mark and with some sadness knowing this might be long term. We were hopeful it was acute but not we are labeled "Chronic" and trying to figure out what is next. On March 15th we did another treatment of WinRho in which she responded well to. Her counts are 173. We are now on the month to month plan vs going weekly. So I will monitor and go back after one month.

I created a little slide show of the moments we have had. As strange as is it is to take a picture of your child in the Hospital, I am glad I have. It makes me look back at the good and the bad and one day I will show her this.

photopeach.com/album/l0d143


Jen
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14 years 6 months ago #13836 by milly
Replied by milly on topic Re: Charlotte after a year
Hi Jen, Charlotte is amazing, how brave is this little girl. This whole ITP thing is hard enough to deal with at 50 let alone at Charlotte's age.
Good luck Charlotte, you have such a beautiful smile.
There is no practice run in life.
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14 years 6 months ago #13876 by alexpaul
Replied by alexpaul on topic Re: Charlotte after a year
This video was amazing your little girl does have an amazing smile.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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