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Caitlin's recent CBC-post Rituxan

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14 years 7 months ago #12739 by wildroseao@aol.com
Caitlin's recent CBC-post Rituxan was created by wildroseao@aol.com
Hello old and new friends--

Caitlin got a CBC at a doc. appt. last week, so I'm updating with official numbers.....
238K, people,:woohoo: eight years, four months after her first and only series of Rituxan infusions in Sept.-Oct. 2002.

She's training Seeing Eye dogs and taking care of manatees and loves it all! Last week, she went horseback riding for the first time in a long while! She's a busy, busy girl---and we are so grateful!

This lifestyle has been brought to her by...Rituxan. Thank you, wise ones! Ann, Caitlin's (23) Mom
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14 years 7 months ago #12769 by xray001
Replied by xray001 on topic Re: Caitlin's recent CBC-post Rituxan
Hey Ann - it's Michelle

Danica did four rounds of Rituximab. She started November 29, and had her last dose on December 20. It has been over 2 months since her last dose, and we still have not seen any improvement (she still needs ivig every two weeks).

I was just wondering how long it took to see an improvment with Caitlin following Rituximab
Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594
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14 years 7 months ago #12774 by wildroseao@aol.com
Replied by wildroseao@aol.com on topic Re: Caitlin's recent CBC-post Rituxan
Hi Michelle--

Caitlin's response was pretty immediate--though she had a few ups and downs.

She was at 33K three days before starting, 71K 4 days after dose 1, 132K on the day of dose 2, 171 four days later, when she was dx'd with pneumonia. Then 136K a week later, and 115K a week after that. Two weeks later, 104K then 140K then 225K about 6 weeks after last dose.

Even if someone doesn't respond with great numbers, some find that other treatments work better after Rituxan, or that their counts, while not sky-high, allow for some relief, if not some riskier fun stuff.... Has any of that happened for Danica? I remember the feeling--how long can this go ON already!? She hasn't tried N-Plate yet...? Hope you can climb on a rocket soon! Ann Caitlin's (23) Mom
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14 years 7 months ago #12782 by isaacsmom
Replied by isaacsmom on topic Re: Caitlin's recent CBC-post Rituxan
Yay Ann! That is wonderful! I am so happy she continues to do well.

We are now at 4 years post Rituxan and Isaac is doing well too! (October 2006) I don't have a recent count, and that in and of itself makes me happy!
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14 years 7 months ago #12787 by tacmom
Replied by tacmom on topic Re: Caitlin's recent CBC-post Rituxan
Wow, your Caitlin is definitely living the life that my Caitlin would love!! They sound sooo much alike! :)

I hope Rituxan continues to be the lifesaver for many other children out there!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
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