Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

I think this is it!

More
14 years 9 months ago #10296 by tacmom
I think this is it! was created by tacmom
I think Caitlin is either already in remission or is headed there VERY soon! She's had 5 weeks of normal counts in a row and last week, her dosage dropped down to the minimum dose! Her counts the last 5 weeks were 185, 156, 204, 314, and this week it was 226! I have to give her possibly the last injection tonight! They said they've never had a patient with this high counts on the minimum dose at their hospital so they have to call Amgen to see what the next step is. It would be so awesome to get a break from the drs appointments, especially since we've been going weekly the last 3 weeks due to being above 200. I have a feeling we will have to continue weekly for a few weeks if she stops to track her counts only because of the trial!

Wishing everyone lots of platelets his upcoming holiday season!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
14 years 9 months ago #10298 by Sandi
Replied by Sandi on topic Re: I think this is it!
Pauline! That is GREAT news! Don't you just wonder why? I know, you'll take it!
More
14 years 9 months ago #10301 by tacmom
Replied by tacmom on topic Re:I think this is it!
Sandi-yes, I do wonder why but i am almost positive it is the Rituximab from last March. I will definitely take it and I dont even blink anymore when she gets hurt. She had about 6 bruises last week but they were real good, hard-earned bruises! :)
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
More
14 years 9 months ago #10339 by alisonp
Replied by alisonp on topic Re:I think this is it!
I am keeping my fingers crossed for you and Caitlin!!! What a brilliant christmas present that would be - I imagine that even staying at the lowest dose with good counts would be a fantastic present!

Ali
More
14 years 9 months ago #10554 by wildroseao@aol.com
Replied by wildroseao@aol.com on topic Re:I think this is it!
Well, well!

Pauline, I couldn't be more pleased to see a slew of NORMAL numbers! Guess you'll know if it's the Rituxan when Caitlin stops the N-Plate and still maintains these great counts! B)

And if so....next, you get to reduce the doctor's appts. and blood draws. :silly: Hopefully the Amgen protocol won't make you keep coming back for monthly follow ups for long.

It's heavenly when it happens! Merry, jolly, happy, blessed Christmas! Oh, and: To infinity and beyond!!! Ann, Caitlin's (23) Mom
More
14 years 9 months ago #10624 by tacmom
Replied by tacmom on topic Re:I think this is it!
Not quite there yet since she still has to get another dose tonight. Her count today was still good, 102 on the minimum dose. We will give her the same dose. She did have a heavy 10-minute nosebleed yesterday morning but I know this was due to the weather rather than ITP.

Have to return again next week but at least Im still on break. Hope her counts sustain so we can skip a few weeks at the hospital.

You all have a very Merry Christmas and a Happy New Year! Hope 2011 brings more children into remission from ITP and more can have some restrictions lifted on what they love to do! Thank you all for being our rock during our ups and downs through 2010!
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...
Moderators: jaycharness
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use