Other treatment options

We are 9 months into this and have done steriods, IvIG, and WinRho. Our hematologist mentioned looking at alternative treatment plans. Can someone tell me what the alternative treatments are? I know he mentioned an Oral test trial one at St. Jude's but can't recall the name.

Also, has anyone not treated and just choose to see what the body does. Or looked at a homeopathic option?

Thanks,

Jennifer
Mother to Charlotte 4 yr old

Jennifer,

I would highly encourage you to look into homeopathy. If you do a search of this forum you'll find posts from April, myself, and a few other people who have very successfully used homeopathy. There are at least three others I am aware of being treated successfully that do not post here. It is safe, non-toxic, and WORKS. There is a natural treatments section, I would start there. Also do a search for "homeopathy" in this forum. Feel free to message me if you have any questions.

patti

Although there are many commonalities with ITP, a lot of decisions you make will be based on how your child's ITP behaves. We spent the first year after diagnosis treating our son (steroids first then WinRho when he got low.) But had we known what we learned since, we are now in year 3, we probably would have gone to no treatment sooner. We are lucky that our son's ITP tends to stay above 50k and he doesn't have many bleeding symptoms so we don't have to treat, but we didn't know that at first. It took two years of watching counts, being careful when he is sick because his counts drop (they boost up a lot after a sickness however and then level back to 50-60k) and finally just getting used to the idea that ITP is with us indefinitely.
We have tried homeopathy, gluten free diet and anything else I could find that may improve/support his condition. Perhaps it's all the kale and berries keeping his counts high - who knows? This is all to say, try anything but know that not treating, otherwise known has watch and wait, is a fine option.

Although there are many commonalities with ITP, a lot of decisions you make will be based on how your child's ITP behaves. We spent the first year after diagnosis treating our son (steroids first then WinRho when he got low.) But had we known what we learned since, we are now in year 3, we probably would have gone to no treatment sooner. We are lucky that our son's ITP tends to stay above 50k and he doesn't have many bleeding symptoms so we don't have to treat, but we didn't know that at first. It took two years of watching counts, being careful when he is sick because his counts drop (they boost up a lot after a sickness however and then level back to 50-60k) and finally just getting used to the idea that ITP is with us indefinitely.
We have tried homeopathy, gluten free diet and anything else I could find that may improve/support his condition. Perhaps it's all the kale and berries keeping his counts high - who knows? This is all to say, try anything but know that not treating, otherwise known has watch and wait, is a fine option.

It so much depends on the child and their symptoms, lifestyle and the things they want to do. However, I just wanted to agree that not treating at all seems to have been a perfectly viable option over the last year for my son whose counts have ranged from 10-110 but sit most of the time at around 30-40K. He is very active - he has a black eye today after having been hit with a basketball in the face yesterday! Very few kids in the UK get treated for ITP.

Ali