Platelet Disorder Support Association

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New to all of this....

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9 years 2 months ago #55107 by Bellazac1971
New to all of this.... was created by Bellazac1971
Our 12 year old daughter was diagnosed 2 weeks ago after a number of attempts on my part to question why all of the symptoms were occurring. Just starting to get our heads around it all.
Can I ask about flying. We have a family holiday in 2 weeks which would be good for everyone's mental wellbeing but really not sure what is for the best. Our daughter is fab about the whole thing and is taking blood tests and a change of duet very much in her stride. Really proud of her, :)
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 2 months ago #55122 by Sandi
Replied by Sandi on topic New to all of this....
What are your daughter's counts? Has she done any treatment?
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9 years 2 months ago #55128 by eklein
Replied by eklein on topic New to all of this....
The activities which are safe (flying, sword fighting, cliff diving, roller coasters, etc.) depend on platelet counts and bleeding symptoms.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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9 years 2 months ago #55135 by Margaret k
Replied by Margaret k on topic New to all of this....
My consultant allows flying when my count is above 20.
Moderators: jaycharness
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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