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8 yr old son

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9 years 5 months ago #54238 by bnhamilton01
8 yr old son was created by bnhamilton01
Newly diagnosed son with ITP took him to ER after teacher noticing red spots on his body count was at 6 immediately took him to children's hospital where they did IVIG count was up to 111 and 2 weeks later back down last week they were at 56 and today 34 at pediatrician office. Dr said still not critical but wants him back in 2 weeks for another check. Why do they wait so long why isn't he tested weekly if it is dropping so fast. What are other alternative treatments? I don't want steroids because he already has an attitude issue that I think will only make it worse. I don't understand why they have to wait so long are they waiting for it to bottom out again and do another IVIG? Someone please help me understand
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9 years 5 months ago #54240 by alisonp
Replied by alisonp on topic 8 yr old son
The drs aren't being mean or neglectful, they are trying to save your son from unnecessary medical intervention.....tests and treatment. Constant blood tests are traumatic and unnecessary. Treatments aren't nice and all carry some sort of risk. Most kids don't need treatment no matter how low their counts are. Most kids manage just fine with being a bit more careful than usual. And most kids RECOVER! I know it's scary but you need to try to focus more on symptoms rather than numbers. If he's not actively bleeding then it's not critical. If his gums or nose start bleeding he has blood blisters in his mouth, or if you notice blood in his urine or stools though, then you need to seek medical attention for him. Good luck, hopefully it will be a short lived thing :-)
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 5 months ago #54241 by Sandi
Replied by Sandi on topic 8 yr old son
Alison is right for all of the reasons that she stated.

Here are some articles that back it up.

pdsa.org/forum-sp-534/12-newly-diagnosed/27819-managing-itp-in-children-update-12-4-14.html

If symptoms increase before the next appointment, you can always call and get him checked out.
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