Platelet Disorder Support Association

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Bleeding?

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13 years 1 day ago #28241 by Val715
Bleeding? was created by Val715
My 9yr old son was diagnosed 2 weeks ago with itp. He has been hospitalized twice already. And I'm just a mess with worry. I was wondering if anyone else had experienced bleeding with their child. My son had bleeding from the gums and nose which is truly frightening. He is currently on his second course of ivig and already was treated with winrho. But his highest count since diagnoses has been a 9 and is currently a 5. The bleeding is my biggest concern right now . I sure hope the ivig works this time. I'm truly heartbroken watching him go through this and worried sick.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 9 hours ago #28251 by Sandi
Replied by Sandi on topic Bleeding?
Val:

Have you read this? www.pdsa.org/forum/12-newly-diagnosed/122-for-the-newly-diagnosed.html

I know you are afraid and feel helpless. The good thing is that ITP is usually temporary in children and if not, it is normally manageable. Read the posts written by other parents and you will find some comfort there. In time, things will seem less scary and ITP will not be the center of your life.
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12 years 11 months ago #28262 by Val715
Replied by Val715 on topic Bleeding?
Thanks for your response Sandi. I sure hope his goes away. My heart goes out to anyone dealing with this very scary disease.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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