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Chinese Medicine Shen Xue ling

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12 years 1 month ago #35945 by kotasri9
Chinese Medicine Shen Xue ling was created by kotasri9
Hi
Did any one use Shen Xue ling for ITP.I want to ty it out as Rituxan didnt work for me.Doctor is advising to go for splenectomy or N plate which i dont want to. Any suggestions would help
12 years 1 month ago #35947 by
Replied by on topic Chinese Medicine Shen Xue ling
And what is Shen Xue ling?

I did find this but it makes no sense to me
www.ncbi.nlm.nih.gov/pubmed/2054887

No matter how I put it in nothing comes up on it.


When did you have Rituxan - what is your count?
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12 years 1 month ago #35948 by Rob16
Replied by Rob16 on topic Chinese Medicine Shen Xue ling
This is a very cool find (both of you!)

Stem cells in marrow --> megakaryocyte progenitors --> megakaryocytes --> platelets

The article is stating that they cultured megakaryocte progenitors cells from various donors.
ITP donors' cells grew poorly. SXL added to cultured caused the cells to culture better.


The results suggested that SXL might inhibit the antiplatelet antibodies, facilitate reproduction, division and maturity of CFU-meg.

[CFU-meg are the megakarypcyte progenitors.]

In other words, this stuff helps grow platelets, perhaps by inhibiting antibodies, at least in a test tube.

Is this SXL stuff an herbal?
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12 years 1 month ago #35949 by Rob16
Replied by Rob16 on topic Chinese Medicine Shen Xue ling
Can't find much, and translation into english is problematic.

There is or has been a clinical study published in Japan, but they want $15 to read the article.
sciencelinks.jp/j-east/article/200017/000020001700A0392417.php
Clinical study on idiopathic thrombocytopenic purpura treated with SHEN XUE LING.
Accession number;00A0392417
Title;Clinical study on idiopathic thrombocytopenic purpura treated with SHEN XUE LING.
Author; ZHOU Y (Shanghai Univ. Tcm, Shanghai) HUANG Z (Shanghai Univ. Tcm, Shanghai) XUE Z (Shanghai Univ. Tcm, Shanghai) YAO C (Shanghai Univ. Tcm, Shanghai) HUANG T (Shanghai Univ. Tcm, Shanghai) QIANG G (Shanghai Univ. Tcm, Shanghai)
Journal Title;Int J Hematol Suppl
Journal Code:L2555A
ISSN:0917-1258
VOL.71;NO.1;PAGE.266(2000)
Figure&Table&Reference;
Pub. Country;Japan
Language;English
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12 years 1 month ago #35960 by kotasri9
Replied by kotasri9 on topic Chinese Medicine Shen Xue ling
This is chinese herbal therapy.They have scientifically proved the platelet count increase..They did a clinical trial and were successful. It is a combination of some saponins.The paper is free on the internet.
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12 years 1 month ago #35961 by kotasri9
Replied by kotasri9 on topic Chinese Medicine Shen Xue ling
After the Rituxan count did not increase.taking 40 mg of IVIG every two weeks.This is keeping count stable and out of danger.
12 years 1 month ago #35963 by
Replied by on topic Chinese Medicine Shen Xue ling
The paper is free on the internet.
Do you have the url for the paper? I'm just curious - I have no problem with Chinese medicine as long as it won't lower my platelets :)

I'm not sure how IVIg works, but hadn't heard of it as 40mg. Do you get the infusions at a hospital? What is your platelet count?

Thanks Rob, I couldn't find anything on it except what I put above.
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12 years 1 month ago #35964 by eklein
Replied by eklein on topic Chinese Medicine Shen Xue ling
Rob and everybody,
Sometimes your public library will be able to get you an article that you'd have to pay for, for free.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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12 years 1 month ago #35965 by Rob16
Replied by Rob16 on topic Chinese Medicine Shen Xue ling
kotasri9,

1) yes, please do you have a url? or can you cut and paste some of the text?

2) is the paper in english?

3) where do you get this stuff?

4) how is it used?

Thank you!

ps., could that be 40 mg dexamethasone?
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12 years 1 month ago #35966 by kotasri9
Replied by kotasri9 on topic Chinese Medicine Shen Xue ling
Provide me your email addrees- I can send you the paper directly.
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12 years 1 month ago #35967 by kotasri9
Replied by kotasri9 on topic Chinese Medicine Shen Xue ling
It is IVIG only. IVIG is taken 1-2mg per kg body weight. So I am taking 40 mg of IVIG( less dose)
12 years 1 month ago #35968 by
Replied by on topic Chinese Medicine Shen Xue ling
Thank you but no thank you kotasri9 - I'd rather you post the URL here so I can go to it.

As Rob asked, how does one go about getting the Shen Xue ling?

Thanks!
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12 years 1 month ago #35969 by kotasri9
Replied by kotasri9 on topic Chinese Medicine Shen Xue ling
I havent got it --but want to try out in chinese stores.For the URL I ll need some time may be tomorrow I will post it., as I dont have time to search .
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12 years 1 month ago #35970 by Rob16
Replied by Rob16 on topic Chinese Medicine Shen Xue ling
Here it is in chinese:

申雪玲
and immune thrombocytopenic purpura is 免疫性血小板减少性紫癜

Google can search on chinese characters. Then use google translate to read article.
I still couldn't find anything useful.
That would have been awesome if it worked!
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12 years 1 month ago #35971 by eklein
Replied by eklein on topic Chinese Medicine Shen Xue ling
Wow Rob how did you do that?

I'm going to Hong Kong in a couple of weeks and could really use something that says 'No Onions Please' in Chinese.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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12 years 1 month ago #35973 by Rob16
Replied by Rob16 on topic Chinese Medicine Shen Xue ling
I did that just for you, Erica. I owed you for teaching me the expression google fu.

Go to translate.google.com/ and do from English to Chinese.

Then cut and paste the result.

没有洋葱，请 is no onions please. But for all I know it means extra ketchup.
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12 years 1 month ago #35977 by eklein
Replied by eklein on topic Chinese Medicine Shen Xue ling
Rob do you know about google whacking?
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
More
12 years 1 month ago #35978 by Rob16
Replied by Rob16 on topic Chinese Medicine Shen Xue ling
I didn't know googlewhacking by that name, but of course now I do!

If thrombocytopenic aardvark gets 12,700 hits, I think the game is hopelessly difficult.
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12 years 1 month ago #35982 by jeffrey71
Replied by jeffrey71 on topic Chinese Medicine Shen Xue ling
Use the word "bu" then onion, they will get it! Bu means no in Mandarin.

Ni hau (nee how) hello

Zia Jin means good bye or see you later

Chinese people are Mae gouren

I used to speak Mandarin! It was a long time ago

Jeffrey
  • CindyAnn
  • Offline
  • Diagnosed Jan 10, 2008. Rituxan treatment in May 2009. Treated with Prednisone off and on until 08/23/17 - 12.5mg Promacta as of 10/22/17
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12 years 1 month ago #35983 by CindyAnn
Replied by CindyAnn on topic Chinese Medicine Shen Xue ling
Jeffrey,

Is there anything you haven't done - if so I am sure the list is short. It is very enjoyable to read of your adventures - some of us have to live thru others you know ;)

Cindy Ann
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