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One year Aniversary

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15 years 2 months ago #9425 by srunge
One year Aniversary was created by srunge
Today is the one year anniversary of Emmy being diagnosed with ITP, and I am happy to say that she is at 214K! It's been one heck of a roller coaster ride, and we've tried many different medications, but the one that has given her this remission was the Rituxin. It's been 6 weeks since her last infusion. We are so thankful!
Wishing you all the best!

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 2 months ago #9438 by Sandi
Replied by Sandi on topic Re: One year Aniversary
I'm happy that you have good news to share on this date. I hope it lasts!

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15 years 2 months ago #9445 by CindyL
Replied by CindyL on topic Re: One year Aniversary
That's fantastic! I wish Emmy a long remission.

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15 years 2 months ago #9460 by softdesk
Replied by softdesk on topic Re: One year Aniversary
Hi Emmy,
Good We are happy for You. My daughter Franny sitting here would write this but the PC has been acting up and We want to post so I am posting for Fran ((10) years soccer player. Fran has just finished four weelky retuxmab treatments ending on the 26 October wit low number of 16. Doc says it may have been a bad test due to couglation. Tommorow we will get the results of todays blood test we pray the number is enough to allow Fran back on the field to start winter practice season here in Hawaii. We will post on discussion for teens tommorow. Aloha from Ed (frans dad and Franny

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15 years 2 months ago #9465 by lili
Replied by lili on topic Re: One year Aniversary
Congrats! Those are great counts. I hope it's a long remission and I hope that Franny has equally good results.

Lily

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15 years 1 month ago #10005 by srunge
Replied by srunge on topic Re:One year Aniversary
Just a quick update, Emmy is still doing well about 10 weeks after her last infusion of Rituxan she is at 211K and all other blood is perfect. I can't believe the relief I feel! Though I'm still not going to get too excited yet...

I've been thinking a lot about Franny and Ed, I haven't seen an update after her Rituxan treatments. Does anyone have any info. I pray it is going well for her too.

Happy holidays to all! We'll enjoy this one much more this year :)

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14 years 11 months ago #12575 by emma1
Replied by emma1 on topic Re: One year Aniversary
Best of luck to Emmy!!!

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.