Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Need some feedback on 6-MP

More
15 years 2 months ago #9339 by jlollman
Need some feedback on 6-MP was created by jlollman
Hello,
I posted on the childrens forum but wanted to also post here.
I was wanting to get some experience stories on people/kids taking 6-MP.
I have a 4yr old who we are considering giving it to.
Are we going to have to worry about him getting infections since he is going to school?
Any info. would be great!!

Thanks!

Julie
Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3

Please Log in or Create an account to join the conversation.

More
15 years 2 months ago #9357 by SteveC
Replied by SteveC on topic Re: Need some feedback on 6-MP
check out this PDSA historical thread @ discuss.pdsa.org/topic.asp?TOPIC_ID=24078
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C

Please Log in or Create an account to join the conversation.

  • patti
More
15 years 2 months ago #9359 by patti
Replied by patti on topic Re: Need some feedback on 6-MP
6MP is a chemo drug frequently given to children who have ALL (Acute lymphocytic leukemia). Since it is a chemo drug you have a risk of permanently damaging a person's DNA with it which can lead to future cancers. Not the least of which is MDS (leukemia pre-cursor). It's certainly effective as a chemo drug, but in light of other options that exist for ITP (both natural and drug options) I would wonder why they're suggesting this? It seems a rather strong course to take on a child so young without leukemia (not that'd I'd do it on a child with leukemia, but I think you can understand what I'm saying).

patti

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
15 years 2 months ago #9378 by Sandi
Replied by Sandi on topic Re: Need some feedback on 6-MP
6MP is more commonly used for ITP than one would think, especially children.

Any immunosuppressant carries the risk of future cancers, even Prednisone. This is why we must balance the 'benefit vs risk' and it sure seems like Julie is doing just that by checking it out.

Good luck with your decision, Julie. All treatment decisions are tough ones.

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
15 years 2 months ago #9379 by Sandi
Replied by Sandi on topic Re: Need some feedback on 6-MP
www.itpkids.org/docs/6m.html

discuss.pdsa.org/topic.asp?TOPIC_ID=24078

discuss.pdsa.org/topic.asp?ARCHIVE=true&TOPIC_ID=24202

onlinelibrary.wiley.com/doi/10.1002/pbc.21729/full

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.