!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Danizol

More
15 years 3 months ago #9074 by grammybebe
Danizol was created by grammybebe
Have many out there had any success with Danizol? What I have read, doesnt sound very encouraging...

Please Log in or Create an account to join the conversation.

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
15 years 3 months ago #9088 by Sandi
Replied by Sandi on topic Re: Danizol
Danazol doesn't work quickly or often. I can only remember one person who had real success with it a long time ago. Since it's a long term treatment, most people can't stand the side effects.

Good luck!

Please Log in or Create an account to join the conversation.

More
15 years 3 months ago #9260 by kungpaokitty
Replied by kungpaokitty on topic Re: Danizol
I was on Danazol over the summer. For me the side effects were horrible and it didn't do too much for me except make me very uncomfortable. My counts were never over 100 while I was on it. I think my highest then was 76.

Please Log in or Create an account to join the conversation.

More
15 years 3 months ago #9283 by CindyL
Replied by CindyL on topic Re: Danizol
I was on it briefly the year I was diagnosed, but it didn't do diddly squat, so my doc took me off it. I don't remember any side effects from it.

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.