PROMACTA?

Has or is any one on promacta? I have been on it for 5 days and still around 4,000 can anyone tell me how long it takes to work or if it worked for them seems like a very expensive drug for a what if this works

I've been on Promacta for almost 60 days. My platelets were 11K when I started. They are 93K now.

Good luck.

are you having any side effects?

I was on Promacta for 5 weeks, it didn't work for me. I had no side effects.

Now I'm on Nplate, and this seems to work. My counts climbed from less than 1000 to 6000 last thursday.

I have been on Promacta for 9 months. Started taking it after immune suppressants quit working for me.
Relax, it can be slow to kick-in for some folks.....I am one. IMO, the benefits are worth the delay.
I started on 50mg/day dosage. Hovered in the 4k-8k range for the first week. I was then bumped to the maximum dosage of 75mg/day. My count started on a slow upward climb. By the second week, I'd made it to 14k.
Then it took a couple of months to get into the mid-30k's.
From month 4 through month 6, I hovered in the 40k-50k range.
My most recent check was on August 30th, it has made it to 77k !!!
I have not seen that high of a count in years.
Now we are hoping to be able to reduce the dosage back to 50mg/day in November.
Promacta works for me (right now), it just took time to kick-in.

are you having any side effects?

I neglected to address that question. Yes, I have had many side-effects from Promacta. Overall though, Promacta is far easier for me to live on than steroids and/or various immune-system suppressants.

Basic side-effects for me are:
appetite loss
creepy-crawlies (tiny spiders dancing under my skin)
upset stomach
fatigue
HEAT sensitive (can't stand summer heat for more than an hour or so)

I take my dosage around 1:00am-3:00am so the effects are minimized during the day. But hey, with the appetite loss, I've managed to start shedding some of those old Prednisone-pounds finally!

Promacta didnt work has nplate still been working?

Basic side effects for me are...HEAT sensitive (can't stand summer heat for more than an hour or so)

I have that even without Promacta! Guess that's because I'm from Finland, and am not that good at tolerating New England summer heat