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Promacta and migraines

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15 years 4 months ago #8380 by ret9
Promacta and migraines was created by ret9
Hi everyone. I was diagnosed with ITP in May. My counts are great at 277K after a couple months of being on Promacta. I started to get migraines soon after starting the Promacta, and I was wondering if anyone else has experienced that. I am having several migraines a week. My hematologist says it is not a known side effect of the Promacta, but it seems weird to only have started after beginning treatment with the Promacta. Thanks for the help!

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  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 4 months ago #8381 by Sandi
Replied by Sandi on topic Re: Promacta and migraines
See these discussions:


discuss.pdsa.org/topic.asp?ARCHIVE=true&TOPIC_ID=24007

www.pdsa.org/discussion-groups/13-general-discussion-for-parents/3355-starting-nplate--promacta-did-not-work.html

I think migraines would concern me since you have a lot of new, sticky platelets and counts that are pretty high. Can you talk to the doctor about lowering the dose?

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  • weirdjack
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15 years 4 months ago #8390 by weirdjack
Replied by weirdjack on topic Re:Promacta and migraines
Did you have migraines prior to Promacta?

I've had migraines since 1974. I have a script for Imitrex to treat them.
I've also been on Promacta for the past 8 months: 75mg/day max dosage.
I have had exactly 3 migraines since January. Prior to that, I averaged 2-3 migraines every month.
Another case of 'everyone is different' I suppose.

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15 years 4 months ago #8408 by ret9
Replied by ret9 on topic Re:Promacta and migraines
I had maybe 2 migraines before the Promacta. My hematologist didn't seem overly concerned when I saw her last Friday. I made an appointment with a neurologist in a couple of weeks, and I will see what he says. Hopefully I will have some answers soon.

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  • weirdjack
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15 years 4 months ago #8428 by weirdjack
Replied by weirdjack on topic Re:Promacta and migraines
You may want to ask your doctor about Imitrex.
Everyone is different for certain, but Imitrex is a common treatment for severe migraines. Knocks 'em right out (for me) and doesn't give (me) any adverse side-effects. It's the only migraine drug I have found to be 100% for me.

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15 years 4 months ago #8434 by ret9
Replied by ret9 on topic Re:Promacta and migraines
I was prescribed Imitrex, and it does work; I am mostly worried about the frequency. I get on average 3 a week. I hope I can find the cause and not have to take medicine. I really don't want to have to take another medicine.

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.