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Declaring today as "Good Monday"

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15 years 1 month ago #7808 by SteveC
Declaring today as "Good Monday" was created by SteveC
Final Rituxan infusion and it's my taper day (down another 5mg to 65mg/day). Unfortunately I've been unresponsive to Rituxan (statically where I started 4 weeks ago @ 14). During 4 weeks had an IVIg that bumped me to 24 but only lasted 6-7 days. Pred doing nothing but messin with my mind, sleep and food! But any day I reduce Pred is a GOOD day!
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C
  • server
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  • newcreationchangingdaily
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15 years 1 month ago #7818 by server
Replied by server on topic Re:Declaring today as "Good Monday"
First I gotta say Hallelujah and Amen!
You gotta give the Rituxan some more time. Weeks even. I'll be praying for a large bump up for you!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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15 years 1 month ago #7834 by kmcadams
Replied by kmcadams on topic Re:Declaring today as "Good Monday"
hey there, can you tell me what a rituxan infusion therapy course looks like? How long did u have itp before you tried it? i have read some great things from some people. Are there side effects? Anything you can share would be helpful. (Mom of 12 yr old son with 5 mos ITP)
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15 years 1 month ago #7844 by SteveC
Replied by SteveC on topic Re:Declaring today as "Good Monday"
Typical adult Rituxan Rx is 4 IV infusions 7 days apart. Each of mine took about 4.5/5 hours but I believe they were intentionally running a little slow to allow monitoring of systemic reaction - didn't have any. I was also pre-med with two Tylenol and 50mg Benadryl IV to minimize system reaction. Benadryl puts me to sleep for 2-2.5 hours - just can't stay awake. It's easy - just long. Possible side effect, for me, is a metallic "taste" that just won't go away but not everyone has that. Took my own lunch or wife brought me something @ noon and ate while IV in progress. Took books, phone etc to fill the time.
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 1 month ago #7848 by Sandi
Replied by Sandi on topic Re:Declaring today as "Good Monday"
Steve - it's still very early. Rituxan is not known for its quick response.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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