I volunteer at NORD (the National Organization for Rare Diseases) which grants individual patients money (after applications are done) to pay for the treatments of their rare/orphan diseases. ITP is one of them. I just do office work, ie copying, envelope stuffing, and paper shredding) so I can't tell you specifics. But I do know the organization sends checks to patients for their treatments who otherwise couldn't afford the medicines. The organization also helps with finding clinical trials for some diseases. You might want to check its website. There is information there to connect with it.
www.rarediseases.org/
Caroline
Diagnosed with ITP 9/14/1980, the day oldest son was born, & it continued through the births of my other 2 sons and continues now! No treatments until March 2011 when I had a TKR and my count decided to plunge. Sons now almost 25-30. My spleen's still with me.
PKR 09/2008
TKR 04/2010
TKR...