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My short story

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15 years 2 weeks ago #8278 by Ishani
Replied by Ishani on topic Re:My short story
Thanks for your support. I am trying to think positive, but its getting harder and harder :(
Look forward,
and the shadows
will fall behind you!
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15 years 1 week ago #8586 by Ishani
Replied by Ishani on topic Re:My short story
My counts are still arount 1000. No improvement. Got my second shot of Nplate today.
Look forward,
and the shadows
will fall behind you!
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14 years 11 months ago #9227 by 28lorelei
Replied by 28lorelei on topic Re:My short story
Good luck with finding a way to improve your count! how is it now after 4 weeks?
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14 years 11 months ago #9300 by DeeDee Marie
Replied by DeeDee Marie on topic Re:My short story
Has your doctor checked to see if you are taking any type of medication that might affect your platelets? I was taking Sinequan to help me sleep (known to lowering your platelets) and once I stopped taking it, my platelets started to go back up--at least they have for the last few months? It's just a thought.

Try to be strong. At least you are not showing signs of bleeding and bruising.
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14 years 11 months ago #9328 by Lorie85
Replied by Lorie85 on topic Re:My short story
Hello Petra (i wont forget your name because my best friend is a Petra too :) ) I understand how you feel hoping that the platelets will go up. and It can be frustrating living with low numbers but try not o let it consume too much of your life! Keep hoping for the best and I hope your treatment kicks in soon!
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14 years 11 months ago #9404 by Ishani
Replied by Ishani on topic Re:My short story
Helly everybody,

sorry that I didn't answer earlier.

Nplate started working finally. My counts climbed from below 1000 to 6k, then to 12k and finally to 50k. Unfortunately they dropped back to 10k last week. Don't know why :( Luckily I do not have any side effects.

@ DeeDee Marie:
I do not take any further medication. Only the Nplate (and some vitamins)

Have a good day (and lots of platelets)
Look forward,
and the shadows
will fall behind you!
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14 years 10 months ago #9407 by DeeDee Marie
Replied by DeeDee Marie on topic Re:My short story
Hi Petra,
At least your platelets have gone past 1000--and as NPlate starts to kick in, hopefully they will go up further. I think you said that you've lived with low platelets for a while (was it 2 years?), and your body has adjusted; you don't have any signs of serious bleeding. This is really important. Maybe now that you are on NPlate, you will hopefully see better results over time.

Good luck to you Petra; and hopefully you will see better results with NPlate. Please keep us posted.

Dee Dee
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 10 months ago #9409 by Sandi
Replied by Sandi on topic Re:My short story
Petra:

Counts will usually drop back down between treatments. N-Plate is a maintenance drug; that's why it's usually needed every week.

I'm glad that you started to respond well - good luck!
  • server
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  • newcreationchangingdaily
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14 years 10 months ago #9412 by server
Replied by server on topic Re:My short story
Higher #'s are the point! They just need to adjust the dosage of the NPlate. I hope you keep side effect free!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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14 years 10 months ago #9416 by krisy
Replied by krisy on topic Re:My short story
i am currently on Promacta ..for me my options got smaller and smaller..some things worked ..winroh did and ivig didnt..steroids..the worst..but Promacta has had side effects for..it is convenient..one pill a day..this could be what puts a smile on your face..i think..try everything..if just for a while..i still do have my spleen and im glad i kept it..becauhttp://www.pdsa.org/components/com_kunena/template/default_ex/images/english/emoticons/smile.pngse of the winroh..
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14 years 10 months ago #9648 by Ishani
Replied by Ishani on topic Re:My short story
Hello there :)

My platelets count started to climb again. Today they were at 20.000. Thats promising, i think. I'm now on 8 µg/kg body weight. Still no side effects (a little pain around the injection site, but only for a few hours after injection. I can live with that ;) )

@ Krisy:

I tried Promacta, but unfortunately it didn't work for me.
Look forward,
and the shadows
will fall behind you!
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