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Still topsytervy

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15 years 2 months ago #6792 by gabriela727
Still topsytervy was created by gabriela727
Hello , My name is Gabriela and I have my 9 ye old son who was diagnosed with ITP at age 6 . I am still topsytervy and not sure what way is up. My son has this up and down spills with his Plate count it has not exceded 72 and Now he is back at 31 He now complains of pain in his Left side and his hemo DR. tells us he should not play rough with his younger brother . I have a concern since the pain seems to get worse at night ? please can sombody tell me if their is any connection ?[/size]

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Hello , My name is Gabriela and I have my 9 ye old son who was diagnosed with ITP at age 6 . I am still topsytervy and not sure what way is up. My son has this up and down spills with his Plate count it has not exceded 72 and Now he is back at 31 He now complains of pain in his Left side and his...
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15 years 2 months ago #6889 by Tad Moody
Replied by Tad Moody on topic Re:Still topsytervy
Hi, Gabriela.

I don't know if there is a connection, but you can't go wrong by letting a doctor examine him if his pain persists or gets worse.

Poor little guy!

I have no children, but a lot of folks on this site have kids with ITP and can offer lots of advice!
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15 years 2 months ago #7022 by spanky
Replied by spanky on topic Re:Still topsytervy
Hey Gabriela!
My heart goes out to the little guy! I have no kids, but it sounds like something that i go through. I do a little too much during the day and collapse at night. Where rolling in bed is incredibly achey\painful. If I do my normal day of little activities, i'm still sore, but not nearly as bad if I were to push it. I do notice that my knees are bar far the worst. I am newly diagnosed within the past 5 or so months and still trying to figure things out. Additional input for others would be great!