Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Psoriasis Treatments

More
15 years 3 months ago #6206 by Gort
Psoriasis Treatments was created by Gort
Another immune system present.

Has anyone taken any of the "biologic" treatments for Psoriasis, such as Humana, Remicade, or Interleukin? All list cytopenia as a side effect, but I've seen cytopenia listed on so many drugs over the years that I hardly pay attention to it anymore. Humana includes a more specific warning about thrombocytopenia.

Anyway, if you have taken any of these "biologics" with counts around 20, I'd appreciate hearing what worked & what didn't, and whether it impacted your counts.

Thanks

--Steve
Living with ITP since 1967.
"Abandon negative action; Create perfect virtue; Subdue your own mind. This is the teaching of the Buddha."
More
15 years 3 months ago #6210 by DebbieC
Replied by DebbieC on topic Re:Psoriasis Treatments
Hi Steve, I haven't tried any of those so no help there. I do find that I do better when I get out in the sun more but of course not when I burn. One winter I took Vitamin D and I had a remission. It came back the next fall though. I wasn't taking Vitamin D as much. I am getting my Vitamin D tested. I find my psoriasis comes back when the heat comes on in the fall. Of course I am in the sun less then too. Good luck with your treatment, Debbie
More
15 years 2 months ago #6216 by mendenmh
Replied by mendenmh on topic Re:Psoriasis Treatments
yea, I have taken two biologics for psoriasis. They were both ones intended more for Rheumatoid arthritis that psoriasis, since the psoriasis-specific ones were very early in development at that time. First I took Raptiva for a few months. It didn't help noticeably. I then switched to Enbrel, which also didn't help. I was taking methotrexate along side of both of these. The bad news is that. it was about two months after I started the Enbrel that I developed ITP. It made me very suspicious, of course, that the Enbrel triggered ITP.

There is, of course, no way I will ever know for sure. Two of my doctors were pretty much betting in opposite directions on whether it was the cause. My dermatologist did file an official adverse reaction report with the FDA.

I now am taking 100mg of imuran (azathioprene) and it seems to be working acceptably, although not perfectly, it is much less annoying than the methotrexate, which made me ill about two days a week after I took it.
More
15 years 2 months ago #6729 by Gort
Replied by Gort on topic Re:Psoriasis Treatments
Thank you for the responses. I appreciate it.

--Steve
Living with ITP since 1967.
"Abandon negative action; Create perfect virtue; Subdue your own mind. This is the teaching of the Buddha."