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Promacta: The Latest and Greatest

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15 years 3 months ago #5374 by hairball01
Promacta: The Latest and Greatest was created by hairball01
After 7 failed or marginally successful regimens in 6 years, I started the Promacta program a few weeks ago. Using the mfg'rs protocol, I started Promacta at 50mg daily. Eight days later the count was 221k. Fourteen days later the count was 441k.... and at that point I stopped taking the Promacta. Four days later after stopping Promacta, the count continued to climb to 595k. We have elected to suspend the Promacta regimen for 14 days with the next CBC scheduled for June 22nd.

A clinical study (NCT00370331) showed about half the patients respond to Promacta at the 50mg dosage. And in isolated cases, platelet counts have approached 750k after 15 days. The Promacta may be a little costly.....but it works for me!
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15 years 3 months ago #5377 by JazzenJanzen
Replied by JazzenJanzen on topic Re: Promacta: The Latest and Greatest
I'm still kinda new to all this.... isn't a count that high dangerous?.. for the opposite reasons of a low count?
15 years 3 months ago #5380 by
Replied by on topic Re:Promacta: The Latest and Greatest

A clinical study (NCT00370331) showed about half the patients respond to Promacta at the 50mg dosage. And in isolated cases, platelet counts have approached 750k after 15 days.

I must be in the "other half"! B)
50mg dosage didn't get me above 14k.
.
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 3 months ago #5407 by Sandi
Replied by Sandi on topic Re:Promacta: The Latest and Greatest
Jazz - usually, a count under 1,000,000 is okay. However, for those on the TPO's or those with APS or other clotting risks, a count on the higher side of normal can be dangerous.
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15 years 3 months ago #5415 by kantooh86
Replied by kantooh86 on topic Re:Promacta: The Latest and Greatest
side effects ????
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15 years 3 months ago #5426 by dmblank
Replied by dmblank on topic Re:Promacta: The Latest and Greatest
I've had no side effects on 25 mgs.
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15 years 3 months ago #5841 by hairball01
Replied by hairball01 on topic Re:Promacta: The Latest and Greatest
Current update: After taking 50mg Promacta for 14 days, we suspended the med. The count exceeded expectations peaking at 595k on the 18th day. After 32 days the count has drifted down to 158k. Promacta protocol indicates the count should be <150k before restarting the Promacta regimen at 25mg. Next CBC update set for June 30th.
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15 years 3 months ago #6203 by Lorie85
Replied by Lorie85 on topic Re:Promacta: The Latest and Greatest
Thats great News! :)
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15 years 3 months ago #6205 by hairball01
Replied by hairball01 on topic Re:Promacta: The Latest and Greatest
July 5th Promacta Update: The count on June 30th (the 40th day) dropped from 158k to 156k...this is within experimental error and 2k at this level is not significant. My Hemo Doc will wait 2 more weeks for another CBC. And we have not resumed the Promacta.
15 years 2 months ago #6232 by
Replied by on topic Re:Promacta: The Latest and Greatest
Congratulations!

I'm a little envious. I've been on 75mg (max dosage) for six months and I'm hanging around 40k. Which is still better than 4k though.
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15 years 2 months ago #6237 by JMcNally
Replied by JMcNally on topic Re:Promacta: The Latest and Greatest
I was just looking into the Promacta.
You have had some great results!
Any side effects??

The Nplate is not working that great for me want to try something else.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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