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Caitlin's Rituxan Remission continues...

  • wildroseao@aol.com
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15 years 5 months ago #3469 by wildroseao@aol.com
Caitlin's Rituxan Remission continues... was created by wildroseao@aol.com
Hello all!

It has now been 7 years, 6 months of remission for our Caitlin after she received the standard 4-dose Rituxan treatment in Sept.-Oct. 2002. B) She was 15 years old at the time, and prior to that, only Dex pulses had worked to boost her counts; she had tried IVIg and WinRho with little effect. Between monthly pulses, she'd drop like a rock. We didn't ever let her get down to the 2K she was diagnosed with, because that was a bloody mess, requiring hospitalization and surgery for a menstrual cycle that just wouldn't quit. :X N-Plate and Promacta were not in the picture in 2002. She has needed no other treatment since then, and was dismissed by her hemotologist several years ago. She hasn't had a CBC in about 2 years, but has had no symptoms of ITP since Rituxan.

To infinity and beyond! Thank you, Genentech! And thank you, PDSA! It was this forum and you wonderful people who informed us of it! Do you hear me, Ron??? :kiss: Ann, Caitlin's Mom
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 5 months ago #3492 by Sandi
Ann - every year when you update this, it makes me realize how old I'm getting. I remember when she was going through it! Good for her!
  • Kim
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  • Diagnosed with ITP in 1983, lupus in 1990, APS in 2001, vasculitis in 2006. Current platelet count 148. In 2007 I had a stem cell transplant for autoimmune disease and currently ITP and APS remission, with a reduction in lupus activity.
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15 years 5 months ago #3497 by Kim
Great news...
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15 years 5 months ago #3523 by isaacsmom
Replied by isaacsmom on topic Re:Caitlin's Rituxan Remission continues...
Awesome!!!! It is now 3 1/2 years since Isaac's Rituxan. Honestly, it's been almost a year since his last blood test too! B) :) :cheer:
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15 years 5 months ago #3549 by FranL
Congrats Congrats Congrats!!!! Such great news.... I too had a 7 year remission after a Dex pulse. It was great while it lasted and I truly hope that yours continues on and on!!!!