Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Side effects Promacta be Rituxan

More
2 years 8 months ago #72915 by KellMichelle
Side effects Promacta be Rituxan was created by KellMichelle
Seeing my Doctor tomorrow. I can’t tolerate a high dose of steroids so it appears my choice of treatments will be between these two. Any side effects I should be aware of that may help me make a decision? Thank you in advance. 
More
2 years 8 months ago #72917 by MelA
Replied by MelA on topic Side effects Promacta be Rituxan
Not many of us could tolerate the high dose steroids - when I was diagnosed the only treatments were prednisone (I was given 60mg) or splenectomy.   I do sympathize with you!

Have you talked with your hematologist about the side effects of the 2 treatments being considered?

Good luck!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
More
2 years 8 months ago #72919 by CindyL
Replied by CindyL on topic Side effects Promacta be Rituxan
I have no experience with Promacta, but I did Rituxan in 2011 and haven't had any side effects since.  But you have to remember, we are all different.  Just because I didn't doesn't mean you won't.
Mel is right.  You should talk to your heama doc about the two medications.
Good luck.
More
2 years 8 months ago #72924 by KellMichelle
Replied by KellMichelle on topic Side effects Promacta be Rituxan

Not many of us could tolerate the high dose steroids - when I was diagnosed the only treatments were prednisone (I was given 60mg) or splenectomy.   I do sympathize with you!

Have you talked with your hematologist about the side effects of the 2 treatments being considered?

Good luck!
Yes, I’ve talked to her. She’s pushing Promacta, but I was looking for real world experience from someone who was taking them. 
More
2 years 8 months ago #72926 by Margaret k
Replied by Margaret k on topic Side effects Promacta be Rituxan
I've been on Promacta without a break for 7 years and have had no noticeable side effects. A trial before that with rituxan was ineffective and screwed up my immune system so much that I got necrotising gingivitis- not at all nice- so I would vote for Promacta. My count is now stable between 100 and 150 on  just 4x 25mg a  week.
  • midwest6708
  • Offline
  • ~ Janet ~ Diagnosed Sept. 2008
More
2 years 8 months ago #72930 by midwest6708
Replied by midwest6708 on topic Side effects Promacta be Rituxan
I take Nplate, which works by the same mechanisms as Promacta. Five years ago, I took my doctor's recommendation to try Rituxan and had a terrible reaction to it that hospitalized me for six days and left me with a permanent balance disorder.  Not saying there's any high probability that would happen to you, but you can understand why my first choice would be one of the platelet booster drugs vs. one that destroys otherwise beneficial blood components. 

By now you’ve seen your doctor.  Have you made your choice? 
  • mrsb04
  • Away
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
2 years 8 months ago #72932 by mrsb04
Replied by mrsb04 on topic Side effects Promacta be Rituxan
Promacta has dietary restrictions but these can be got round fairly easily.
It can take a while to work.
Side effects I experienced in no particular order, crazy dreams,  poor sleep pattern, coughing, sneezing, aches and pains all over, bowels on overtime up to 7 times day. All dose related; the higher the dose the worse the side effects. 
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use