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Did IVIG cured you?

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3 years 11 months ago #72328 by sohail009
Did IVIG cured you? was created by sohail009
Hi,

Just like prednisone, IVIG also seems a patchwork or bandaid. I am wondering if anyone ever had any experience that after IVIG they are cured and no further treatment is required?

Thanks.

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3 years 11 months ago - 3 years 11 months ago #72329 by MelA
Replied by MelA on topic Did IVIG cured you?
I had a hematologist who told me he had never had a patient go into remission using IVIg.    

Personally I wouldn't want to do IVIg all the time - it's a blood product and my ITP began very shortly after receiving a gamma globulin injection.  It is believed it was the injection that triggered my ITP.     Now if IVIg was the only thing that kept my platelets at a livable number then that would be a different story.  There was a delightful older woman here some years back and IVIg, a certain brand, was the only treatment that worked for her, never cured her though.  

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: Ricdillon1

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3 years 3 months ago #72880 by Vicky14
Replied by Vicky14 on topic Did IVIG cured you?
I had a 5 year remission with IVIG (after prednisone not working), then I got ITP five years later (steriods worked then on their own), then third time, I had IVIG and been in remission 23 years since. 

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