Papaya leaf extract works (I know, I know I'm mr. papaya leaf extract, but it absolutely works for me), and guess what, it does this while supposedly Strengthening the immune system. I'm thinking maybe the papaya leaf extract is more on the side of Rituximab in what it does, except that it strengthens the immune system. I only have experience with ivig, platelets, and dexamethasone. Rituximab would probably have been my next try, but it didn't happen. Of course, I would look into the TPO test, given what was recently posted on here, if I had to go to the hard stuff.
But, its kind of mind boggling why anyone wouldn't want to know what papaya leaf extract will do to THEIR platelets. I don't see papaya leaf extract as like the other natural treatments. Oh, I suppose people will say that the pills are not regulated...
There is really no long term commitment. If you combine with dexamethasone, you will probably see a difference with one pill a day. I saw this happen once, so its not exactly proven, in my case. By itself (no dex, no nothing), one pill won't do it. I know 4 will, for me. Once every 4 days or 5 days. Conversely, when I take 4 pills 4 days in a row (only when my numbers are low), my platelets go up 10 fold. So you know immediately. So why in the world wouldn't you want to know. Of course, I have to say be a bit cautious at first, but you can learn pretty immediately if you have the same power of papaya leaf extract that I do., as long as you don't expect results by itself on low dose. Just the way things have worked out, I never tried 2 pills or 3 pills at once. One 500 mg pill a day doesn't cut it for me, although 4 pills, then skip the next 3 days does work, for me. There is no easier treatment option than this. Of course, you need constant blood tests (every 2 weeks or less) to get to the bottom of it.
So, you can look at it this way, too. If you test with papaya leaf extract and it works, you at least know you have a backup, if for some reason you don't want to use it as a maintenance "drug". I personally wanted a maintenance drug that would have fewer side effects. Of course remission would be nice. Do I really want to be dealing with this schedule of papaya leaf extract "forever" (of course, how do I know there won't be remission)?
I mean, its not like the drugs that we're looking at are any great choice! EVERYTHING is hit and miss. Results AND side effects.
I do not sell supplements like papaya leaf extract, and will not even tell which exact product I have been using. I don't think that it matters. I just have ITP, and it would have been helpful to me if someone was saying this stuff before. Fortunately just a little trial and error has gotten me this far in 7 months. So, I'm thankful I had the wherewithal, and thankful for the power of papaya leaf extract, and of course thankful for the blood tests.
Sorry, this is in general treatment, but the segue is the strengthening of the immune system. I don't see a problem with papaya leaf extract going head-to-head with the hard stuff. If it works it works. It absolutely belongs, if it works for others like it does for me. Unfortunately, I have no odds on this, but there have been studies... How do you think I found it?
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