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Fostamatinib

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5 years 2 months ago #69585 by Christine
Fostamatinib was created by Christine
My Hemo is going to put me on Fostamatinib and I was wondering if any other person has tried it and what to expect? I have read the info on this site and it looks quite promising. Thanks in advance.:) :) :)
5 years 2 months ago #69587 by
Replied by on topic Fostamatinib
It didn't work for me. I think just see how it goes. Good luck!
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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5 years 2 months ago #69594 by mrsb04
Replied by mrsb04 on topic Fostamatinib
Christine
The link below is worth reading. There were 2 trials FIT1 & FIT2, which showed only 18% of participants achieved a stable response.
I was part of the FIT2 trial 5 years ago. For the first 8 weeks I could have been on a placebo as it was a randomised controlled trial, but for the remainder I took the real thing, initially at 100mg twice a day for 4 weeks and then 150mg twice a day for the remaining 14 weeks and saw no benefit from it at all. Mind you I had no side effects either. Another lady at my clinic was also on the trial. She had a slight response but unfortunately it did not last.
ashpublications.org/blood/article/133/19/2027/273805/Fostamatinib-for-the-treatment-of-chronic-immune
The following user(s) said Thank You: Christine
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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5 years 2 months ago - 5 years 2 months ago #69623 by Hal9000
Replied by Hal9000 on topic Fostamatinib
How are things Christine?

I have in my notes that once upon a time you were taking 100mg of Promacta (and have taken a bunch of other things). There is one person I know through PDSA that has had good results with Fostamatinib, aka Tavalisse. But I have to mention how they got there. They got there by taking both Nplate and Fostamatinib together from the get-go. As counts went up, Nplate dose was lowered. The dose of Nplate now is very, very small. As I recall, less then a '1' dose.

I have to wonder if taking either Nplate or Promacta with Fostamatinib will get you where you want to go - platelet nirvana.
ITP Types and Treatments by HAL
The following user(s) said Thank You: Christine
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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