Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Cepharanthine - a med from Japan

More
5 years 7 months ago #68466 by Meredith
Cepharanthine - a med from Japan was created by Meredith
Have any if you read or heard about the Japanese treatment for ITP called Cepharanthine?
Apparently it can be ordered.
  • Hal9000
  • Offline
  • Give me all your platelets and nobody gets hurt
More
5 years 7 months ago - 5 years 7 months ago #68509 by Hal9000
Replied by Hal9000 on topic Cepharanthine - a med from Japan
Looks like the drug has been around for awhile. Here is a study from 2012 on its efficacy.
"Clinical efficacy of high-dose cepharanthine for idiopathic thrombocytopenic purpura: retrospective multicenter analysis"
www.ncbi.nlm.nih.gov/pubmed/23318963

Since it is an anti-inflammatory and, from the study, seems to work on the same population as Prednisone. Perhaps it is a substitute for Pred. One would think that there is some sort of problem with it. Else, it would have become popular over the past 8 years since. Maybe it is more expensive to produce than Pred?
ITP Types and Treatments by HAL
More
5 years 7 months ago #68510 by Meredith
Replied by Meredith on topic Cepharanthine - a med from Japan
I wonder why it is not available in the US.
It seems to have minor side effects and is inexpensive compared to others in the US.
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
5 years 7 months ago #68519 by mrsb04
Replied by mrsb04 on topic Cepharanthine - a med from Japan
It doesn't appear to be available in UK either
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use