Platelet Disorder Support Association

Join Us:

Membership Matters

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Another Dex Pulse?

  • GrouchoMarx
  • Topic Author
  • Offline
  • I would never recommend an illness that choses people like me.
More
6 years 5 months ago - 6 years 5 months ago #67296 by GrouchoMarx
Another Dex Pulse? was created by GrouchoMarx
Dear all,
As some of you know, I started my ITP nearly a year ago when I a had a 9K in a routine check up with no bleeding. After some weeks on Pred I got a 4 days 100mg Dex last december. From there (apart from 100 days of Dapsone) I didnt use again Dex or any other medication or treatment. My counts oscillate between 30 K to 50 K. I wish I get it a bit higher.
Might a new Dex Pulse make it? How many dex pulse can we have a year to be on the safe side?
Thanks once again for lisening. To your tips are very much appreciated.

Please Log in or Create an account to join the conversation.

  • Hal9000
  • Offline
  • Give me all your platelets and nobody gets hurt
More
6 years 5 months ago - 6 years 5 months ago #67324 by Hal9000
Replied by Hal9000 on topic Another Dex Pulse?
Just off hand I can't recall anyone ever having more than 4, or maybe 5 pulses, in a row. I've not heard of a yearly limit. If you do 4 pulses and it does nothing long term, wouldn't see a reason to do it again. If it does help, doctor may be ok with it as often as you want. I dunno.

It is really unfortunate that Dapsone didn't work out.
ITP Types and Treatments by HAL

Please Log in or Create an account to join the conversation.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.

© Copyright 1997 - 2026, Platelet Disorder Support Association. All rights reserved.

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.