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I've been on all of it and nothing is working...

  • Itp.jordanfemale74
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6 years 4 months ago #66692 by Itp.jordanfemale74
I've been on all of it and nothing is working... was created by Itp.jordanfemale74
So in the last four years my itp has been very chronic, I've been on Prednisone,promecta, nplate,rituxin,am currently in the hospital for the fifth time in eight months receiving plateyand ivig meds so my question is , is their anyone experiencing this situation
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6 years 4 months ago #66694 by MelA
Replied by MelA on topic I've been on all of it and nothing is working...
You were diagnosed 4 years ago? What have your counts been?
What was your count when you were sent to the hospital for platelets and IVIg?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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6 years 3 months ago #66720 by Hal9000
Replied by Hal9000 on topic I've been on all of it and nothing is working...
There is a percentage of ITP'ers that only respond to IVIG and high doses of Nplate. If this is your case, Fostamatinib (aka Tavalisse) is a new drug and might be a good candidate to try.
ITP Types and Treatments by HAL
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
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