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Accessory Spleenectomy

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6 years 4 months ago #66573 by Wwfbader
Accessory Spleenectomy was created by Wwfbader
So i've recently relapsed after 5 years of being in remission from a spleenectomy. The doctor found out that I have an accessory spleen that's grown, and I wanted to know what was the success of another spleenectomy? Thanks
  • karenr
  • Offline
  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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6 years 4 months ago #66597 by karenr
Replied by karenr on topic Accessory Spleenectomy
How did the doctor determine you have an accessory spleen?
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6 years 4 months ago #66610 by Wwfbader
Replied by Wwfbader on topic Accessory Spleenectomy
Through a CT scan they were able to find that I had an accessory spleen grow, unfortunately it's a rare occurrence and I can't find many people who have gone through 2 splenectomies. The cases i've read said that long term remission from that surgery, is an even lower percentage than the first splenectomy so it's very discouraging to go through it.
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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6 years 4 months ago #66611 by mrsb04
Replied by mrsb04 on topic Accessory Spleenectomy
Splenectomy is not so popular now thanks to modern medications such as TPO-RAs, maybe this is why there appears to be a dearth of information out there for you to read. My main worry would be if I'd grown an accessory spleen once would it happen again should I have it removed?
  • karenr
  • Offline
  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
More
6 years 4 months ago #66623 by karenr
Replied by karenr on topic Accessory Spleenectomy
My hematologist wonders if I could have had an accessory spleen that the surgeon missed--since my unsuccessful splenectomy (in 2004). I've told him that I think it is unlikely, and since the first surgery failed (when I was younger--and age did seem to be a factor in success), I was not interested in checking to see if I DO have an extra spleen. I also suspect that since another organ, presumably my liver, has been destroying my platelets for at least 15 and maybe 18 years, a splenectomy would not be a reasonable option.
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