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Promacta users: question

  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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6 years 9 months ago #65457 by karenr
Promacta users: question was created by karenr
I have been on Promacta 4-1/2 weeks, and my platelets are slowly adjusting downwards--in the low 300s now. I'm also on 5 mg pred/day. (I have another posting about that.)

I take 25 mg of Promacta every other day right now. The most "common side effect" that I have is a mild diarrhea--which tends to dehydrate me and wear me out. Has anyone else experienced this? Does anyone know if this is likely to go away after I become used to the drug? Eventually I may have to be on Promacta every day, and I worry the problem will be twice as bad. (Compared to the side-effects I'm currently suffering that apparently are prednisone-related, this Promacta side-effect is tolerable.)

Karen R
Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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