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Rituxin and thinning hair

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6 years 10 months ago #65260 by packh1@yahoo.com
Rituxin and thinning hair was created by packh1@yahoo.com
I am wondering if anyone has thinning hair as the result of Rituxin.I had treatment 6 mo. ago and my hair is thinning out.
tricia50
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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6 years 10 months ago #65262 by Sandi
Replied by Sandi on topic Rituxin and thinning hair
No, I don't know that Rituxan causes hair to thin. It's not a common complaint. Prednisone does though.
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6 years 10 months ago #65266 by packh1@yahoo.com
Replied by packh1@yahoo.com on topic Rituxin and thinning hair
Thanks Sandi,
Maybe is is caused by something else.I am not on prednisone and haven't been for some time so that isn't the culprit.In the great scheme of things, thinning hair is not that important. On a side note I would like to change my user name.I have tried updating my profile and it accepts the new user name and update but it doesn't change it on the forums.Any suggsetions?
tricia50
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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6 years 10 months ago #65267 by mrsb04
Replied by mrsb04 on topic Rituxin and thinning hair
Interesting, I checked on uptodate which never mentioned hair loss were as the UK electronic Medicines Compendium (aka the nurses bible ) states hair loss is a common side effect .
The following user(s) said Thank You: packh1@yahoo.com
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6 years 10 months ago #65269 by packh1@yahoo.com
Replied by packh1@yahoo.com on topic Rituxin and thinning hair
It is so hard to tell.I haven't had thinning hair before this (other when I lost it all on chemo for cancer-years ago.My hematologist says fatigue is not a side effect of Rituxin yet many sources say it is.
tricia50
  • midwest6708
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  • ~ Janet ~ Diagnosed Sept. 2008
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6 years 10 months ago #65287 by midwest6708
Replied by midwest6708 on topic Rituxin and thinning hair
I had Rituxan in early May. By early October, I had lost at least two thirds of my usual hair thickness. I had started wig shopping when it suddenly just stopped.
Now... Even though Rituxan caused me all kinds of grief, I can't definitely blame it for the hair loss. I had also unintentionally lost 25 lbs. between January and September. That could've caused hair loss, as could've the intense stress from multiple events during that time. Now that the stress is easing and I'm paying closer attention to protein needs, the hair loss rate is back to normal.

I hope your loss will reverse itself soon. It's not an easy thing. Those who say it's not a big thing probably haven't had first-hand experience.
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6 years 10 months ago #65290 by packh1@yahoo.com
Replied by packh1@yahoo.com on topic Rituxin and thinning hair
Thank you for your post.I had my Rituxin the same time that you did.I noticed it this month.I hope it comes back like yours did.Like you say those who haven't experienced it may not understand.That's why I like this group so much.May Rituxin continue to worlk for you.It is the treatment that has worked best for me during the close to 30 years I have been dealing with ITP.My only regret is having had my spleen out.It didn't help.Oh well,I have my bloodwork this week -hoping the count is acceptable.Are your numbers good?.
tricia50
  • midwest6708
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  • ~ Janet ~ Diagnosed Sept. 2008
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6 years 10 months ago - 6 years 10 months ago #65295 by midwest6708
Replied by midwest6708 on topic Rituxin and thinning hair
Oh no, I didn't say it worked. I almost immediately went back on NPlate. The only difference now is that I get by with a much smaller dose than before trying Rituxan. My doctor thinks that's the result of Rituxan, but I'm unconvinced. What it did do was give me a raging bout of serum sickness and vestibular neuritis. I can't say it did anything for me except harm. I'm very happy to hear it seems to be treating you better, though!

Try asking your user name question on this page - pdsa.org/discussion-group/17-new-forum-information.html
Jeff, the PDSA web guy, has helped me in the past. He should know your solution.
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6 years 10 months ago #65299 by packh1@yahoo.com
Replied by packh1@yahoo.com on topic Rituxin and thinning hair
I am sorry to hear Rituxin did such a job on you.N-Plate has been bantered around but I will stay with rituxin if I need it again.I do 4 weeks and am done.
Aslo,want to thank you for the tip on changing user name.don't know what I was thinking using an email.

Be well!
tricia50
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