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Who has the most?

  • RodgerMac
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  • It's not a bug, it's a feature
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7 years 5 months ago #63301 by RodgerMac
Who has the most? was created by RodgerMac
Last week I completed my fifth Rituxan treatment. I’m just wondering how many more they can give me? I’d ask my doctor but after Tuesday May 1, she’ll no longer (she didn’t listen very well to me) be my doctor. I’ve got a few options for a new doctor, I actually get to tour one cancer facility and ask questions of the head nurse specifically about my non cancer case before deciding on the doctor. Thanks Rodger
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 5 months ago #63303 by Sandi
Replied by Sandi on topic Who has the most?
Some people have had eight. Personally, I think that is overkill. According to studies, four treatments are not even needed for ITP; that is the standard for lymphoma and just carried through for autoimmune disorders. Sometimes, more is not better.
  • RodgerMac
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7 years 5 months ago #63304 by RodgerMac
Replied by RodgerMac on topic Who has the most?
Sandi sorry for the confusion but I was referring to five full, four infusion regiments. I respond well to the infusions, I was just curious if there was a number where a doctor said no more.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 5 months ago #63311 by Sandi
Replied by Sandi on topic Who has the most?
Oh, sorry. No, I haven't ever heard anyone say that their doctor put an end to it. The most I've ever seen is four or five. It's only been around for ITP for about 20 years though so long-term effects from multiple rounds probably isn't available yet.
  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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7 years 5 months ago #63318 by dru
Replied by dru on topic Who has the most?
Rodger,
I am in my fifth round now. The first was in 2007. I asked my doctor the same question and he said as long as it keeps working.
  • RodgerMac
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7 years 5 months ago #63319 by RodgerMac
Replied by RodgerMac on topic Who has the most?
Well good luck to you my platelets made it to 134 Monday. So fingers crossed another 18 months to two years kick that can down the road
  • dru
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  • I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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7 years 5 months ago #63344 by dru
Replied by dru on topic Who has the most?
Seems I respond to Rituxan in a similar way to you, remissions of about 2 years each time. Platelets at 275 today up from 19 k after 2 weeks of Rituxan. Tapering off prednisone now.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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