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ITP and headaches

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7 years 6 months ago #62925 by Moe1327
ITP and headaches was created by Moe1327
I've had mild headaches while using Promacta, but the severity of my headaches have increased. Yesterday I've had a massive migraine. Are headaches and dropping of platelets related? My face are is bright red. Just not always sure what is related to ITP and if it is something else.
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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7 years 6 months ago - 7 years 6 months ago #62927 by Hal9000
Replied by Hal9000 on topic ITP and headaches
Moe, it's normally just the opposite. Headaches are worse with higher counts. In my case, when counts are around 90 and higher, I take a low dose aspirin. This little amount is extraordinarily effective for me. Others (esp steroid responders) have reported not such a great benefit from aspirin. If I wake up in the morning with a headache, that implies some sort of micro clot and I take one full aspirin. The headache has always gone away.
ITP Types and Treatments by HAL
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7 years 6 months ago #62928 by Moe1327
Replied by Moe1327 on topic ITP and headaches
Thanks Hal9000, I'm sure it's just my typical migraine. I'll drink more water and try to relax.
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7 years 6 months ago #62953 by penlyn63
Replied by penlyn63 on topic ITP and headaches
I’m with Hal. When my numbers go up I have incredibly bad headaches. It’s how I know (between CBC’s) where I stand. I’m just coming off a 7 day long perpetual headache that Extra Strength Tylenol could barely touch. I was eating 2 every 4 hours and it was only dulling the pain. At my last CBC I was at 268. I had been bumped from 50 mg of Promacta to 75 and that boost has sent me into overdrive. I’m pretty much self-dosing now, as my CBC’s are every 2 weeks. I can tell when I’m back into manageable territory by my side effects lessening.
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7 years 6 months ago #63099 by Kate33
Replied by Kate33 on topic ITP and headaches
I hope you're feeling better Moe1327. Just to confuse things - my headaches always get worse when my counts are low and that's one of the ways I can tell. Funny old world, eh?!
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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