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Treatments and whether to return toe mployment

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8 years 1 month ago #62129 by rcarter15
HI all,
As a quick recap I was diagnosed some 8 years ago, had varying success with treatments getting nearly 4 years of remission after Rituxan in 2013, falling afoul again in Oct last year.

Good news is they gave me another round of Rituxan which appears to be holding (counts holding stead in the 70 - 80k range), but now my immunoglobulins are too low so I am on monthly IVIG (Kiovig) treatments.

Treatments aside I have now been off work since September which means my pay will be affected shortly (half pay then state pay!)

I work in Law Enforcement so I would tend to come into contact with people with just about every illness you can imagine - does a low immunoglobulin count have any play in that? From what I understand a low count makes you more susceptible to infections?

I was wondering if anyone has any experiences of working whilst on IVIG treatment? Is it risky / pros cons etc? I asked my consultant and he was of the opinion its my choice and he'll sign me back to work or off work either way (Doctor sitting on the fence, who'd have thought lol)

thanks
Richard

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8 years 4 weeks ago - 8 years 4 weeks ago #62131 by Dean
Hey Richard,
I also have low Ig levels and have had IVIG several times. I work Security in a Hospital, (straight nights). Are you off work due to low Ig levels? Immunoglobulin levels do put one at greater risk for catching stuff going around. Immunoglobulins are a major part of our immune system, antibodies. They help fight off bacteria and viruses. I caught what was going around back in Oct and I am still trying to get rid of it. Whatever it is gave me my worst bout of low platelets in 14 yrs. I was off work for almost 2 1/2 weeks due to low platelet count. I had no issues working while doing IVIG for low Ig. I guess if you are feeling ok, I do not see why you could not return to work. Handwashing is a very important part of preventing from getting sick. Hope this round of Rituxan gives you an even longer remission. I just finished my 3rd round of Rituxan in 10 yrs.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 4 weeks ago #62142 by Sandi
Richard - that is definitely a question for your doctor. None of us know enough about your situation to give you that advice. Platelets, yes.

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8 years 3 weeks ago #62193 by rcarter15
Replied by rcarter15 on topic Treatments and whether to return toe mployment
Thanks Sandi, as always I follow what the Doc says without question but I just wondered how others might be doing in similar situations. Low immuneglobins is a new one to me :-) I have consultant checkup on the 19th, hopefully they will return me to work after that.

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Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.