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Sanguine Biosciences - I got picked!

  • thomaskm
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  • Male 69 Diag. April 2017 in ER with Petechiae from knees to toes 4 oral cheek blood blisters 3000 count. 3-IVIG rescues, 4, 4 day 40mg Dexamethadrone blasts. Best read 416,000 11/24/2020 (Covid+ bump) On Nplate maintenance every 3 weeks
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7 years 9 months ago #62119 by thomaskm
Sanguine Biosciences - I got picked! was created by thomaskm
Finally someone is going to pay me to sample my blood. In November I was contacted by Sanguine Biosciences evidently through the PDSA surveys I completed. A phlebotomist is driving 5 hours 1/3/18 to take a sample. Supposedly going to hand me a $50 gift card. I was interviewed on the phone and gave additional medical history and was selected a few days later. I have no knowledge of what drug company is funding the study or what treatment or drug they are working on. I accepted to participate to further our cause. I was just wondering if any other PDSA members have been approached?
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 9 months ago #62120 by Sandi
Replied by Sandi on topic Sanguine Biosciences - I got picked!
If they ask you to sign anything, read it carefully first. Make sure they are legit.
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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7 years 9 months ago #62122 by Hal9000
Replied by Hal9000 on topic Sanguine Biosciences - I got picked!
I saw that survey request in the newsletter too. I wished they'd given a clue about what they're looking for.

Speaking of the newsletter, the latest one has several articles on new treatments. Also I noted they said Fostamatinib is showing good results where other treatments are not - on some 20% of the ITP population. For that 20%, that will be a radical improvement in quality of life.
ITP Types and Treatments by HAL
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