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Sanguine Biosciences - I got picked!

  • thomaskm
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  • Male 69 Diag. April 2017 in ER with Petechiae from knees to toes 4 oral cheek blood blisters 3000 count. 3-IVIG rescues, 4, 4 day 40mg Dexamethadrone blasts. Best read 416,000 11/24/2020 (Covid+ bump) On Nplate maintenance every 3 weeks
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8 years 1 month ago #62119 by thomaskm
Sanguine Biosciences - I got picked! was created by thomaskm
Finally someone is going to pay me to sample my blood. In November I was contacted by Sanguine Biosciences evidently through the PDSA surveys I completed. A phlebotomist is driving 5 hours 1/3/18 to take a sample. Supposedly going to hand me a $50 gift card. I was interviewed on the phone and gave additional medical history and was selected a few days later. I have no knowledge of what drug company is funding the study or what treatment or drug they are working on. I accepted to participate to further our cause. I was just wondering if any other PDSA members have been approached?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 1 month ago #62120 by Sandi
Replied by Sandi on topic Sanguine Biosciences - I got picked!
If they ask you to sign anything, read it carefully first. Make sure they are legit.

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 1 month ago #62122 by Hal9000
Replied by Hal9000 on topic Sanguine Biosciences - I got picked!
I saw that survey request in the newsletter too. I wished they'd given a clue about what they're looking for.

Speaking of the newsletter, the latest one has several articles on new treatments. Also I noted they said Fostamatinib is showing good results where other treatments are not - on some 20% of the ITP population. For that 20%, that will be a radical improvement in quality of life.
ITP Types and Treatments by HAL

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.