Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Promacta and weight gain?

More
7 years 9 months ago - 7 years 9 months ago #62042 by Nomad
Promacta and weight gain? was created by Nomad
Hi! I've been on Promacta two weeks. Seems to be doing well. Prednisone was reduced from 12 mgs to 10 mgs. I have Lupus coagulant so my platelets can't get very high (another story...will post in that area).
I gained twenty pounds on prednisone. I have an event to go to in Feb. I have been excited to get my pred dosage reduced. My appetite is slightly better. I'm motivated. For the last ten -14 days (since in Promacta) I have been ultra strict with my diet. Low cal, low carb, reduced sodium, exercise , lots of water etc. At first no loss. Then .8 loss. This morning I gained 2 pounds! What in the world!?!?! So, I'm up 1.2 pounds. Bottom line...has anyone gained weight in Promacta? I'm on 50 mg but it might be reduced to 25. Help!
More
7 years 9 months ago #62044 by penlyn63
Replied by penlyn63 on topic Promacta and weight gain?
I'm a runner and yet still gained weight while on prednisone. When I went off it I lost 30 lbs. I've been on Promacta for almost 3 months and haven't gained any back (that I can't account for thru relaxed eating habits and an injury.) I'm sure your "gain" is simply a water weight issue. I hope you aren't weighing every day. If so, don't!! :-)
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
7 years 9 months ago #62046 by Sandi
Replied by Sandi on topic Promacta and weight gain?
Don't sweat 1.2 pounds. Scales are not 100% accurate and anything can throw it off. If you see an upwards trend over the next few weeks, then you might start to worry a bit. It could very well be water weight from Prednisone and as long as you are on it, weight gain is possible. It takes time to lose weight so try not to get discouraged!
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
7 years 9 months ago - 7 years 9 months ago #62049 by mrsb04
Replied by mrsb04 on topic Promacta and weight gain?
My weight has been completely stable on Promacta
More
7 years 9 months ago #62052 by Christine
Replied by Christine on topic Promacta and weight gain?
I have had weight loss on Revolade (15lbs)
More
7 years 9 months ago #62053 by poseymint
Replied by poseymint on topic Promacta and weight gain?
Promacta/Revolade is an appetite suppressant for many people. I doubt it is making you gain weight, never heard of that- everyone is different of course.
BUT prednisone will causes weight gain even when you reduce dosage because the side effects get worse the longer you are on it (for many people). That said, its important to taper prednisone carefully and slowly depending on how long you've been on it. I lost the 30 pounds I had gained on prednisone, but I also quit eating sugar and that helped tremendously! Eat lots of veggies, no sweets and give it time. If you want a permanent weight lose, that takes time.
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use