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How to travel with ITP

  • Topic Author
8 years 1 month ago #60375 by
How to travel with ITP was created by
Hi. I have tried IVIg, Nplate, promacta and immunosuppresant drugs for ITP. IVIg works in an emergency but only lasts about a week. Promacta didn't work at all. Nplate is the only thing that works, but have to take every week or I crash to 0-2. I hate going to the hospital every week, but right now this is the best option for me. So far the immunosuppresant drugs haven't worked, but still trying.

I would like to take some trips that are 3-4 weeks long. Does anyone have any ideas? I certainly will bring tranexamic acid along, but it isn't a great solution. Single digits still means I have to be careful and I do not feel well. I wish I could self-inject Nplate, but .....

Thank you
  • thomaskm
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  • Male 69 Diag. April 2017 in ER with Petechiae from knees to toes 4 oral cheek blood blisters 3000 count. 3-IVIG rescues, 4, 4 day 40mg Dexamethadrone blasts. Best read 416,000 11/24/2020 (Covid+ bump) On Nplate maintenance every 3 weeks
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8 years 1 month ago #60376 by thomaskm
Replied by thomaskm on topic How to travel with ITP
If you are traveling domestically and you know ahead of time where you will be on your weekly injection day, I wonder if you could prearrange for your injection out of town, carrying or faxing a prescription? Or prearrange a hematologist appointment. There are probably many hospitals that don't have quick access to Nplate. I will need an answer to this question also. There is always the question of insurance also if you have a policy that punishes out of network care. Nplate is working for me also. Good question to ask your provider, I will be asking mine!
  • thomaskm
  • Offline
  • Male 69 Diag. April 2017 in ER with Petechiae from knees to toes 4 oral cheek blood blisters 3000 count. 3-IVIG rescues, 4, 4 day 40mg Dexamethadrone blasts. Best read 416,000 11/24/2020 (Covid+ bump) On Nplate maintenance every 3 weeks
More
8 years 1 month ago #60377 by thomaskm
Replied by thomaskm on topic How to travel with ITP
I just found this on the Nplate web page! Through Nplate® Navigator, you can receive assistance in locating a physician who may be able to give you your Nplate® injection while you’re away from home.

You or your healthcare provider can call Nplate® Navigator at 1-855-7Nplate (1-855-767-5283) Monday–Friday, 9:00 AM–9:00 PM Eastern Time, and speak to a registered nurse to help locate a physician.
  • Topic Author
8 years 1 month ago #60442 by
Replied by on topic How to travel with ITP
My doctor said receiving Nplate at different location would require a physician in the different location prescirbing and administering the Nplate. It is something to consider if I will be at a different location for an extended period of time. However, I don't think it's feasible for a 2-3 week trip.

Thanks for the info about Nplate Navigator. I will give them and my insurance a call. I'm also trying to figure out how to travel internationally. ITP is really annoying. I keep hoping for remission...

Let me know what info. you find out. Hopefully we can both figure out how to travel and live adventurous lives despite ITP.

Thanks again
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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