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Excellent article explaining steroid withdrawal symptoms

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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8 years 3 months ago - 8 years 3 months ago #59629 by mrsb04
Excellent article explaining steroid withdrawal symptoms was created by mrsb04
As a nurse of many years experience and having had the the misfortune to suffer debilitating withdrawal symptoms at my first attempt to get off the wretched things I think this link offers a good explanation of the topic.
The two things I'm not over happy about are
1] the final paragraph of section 4 because medical advice should always be taken when tapering, It could save your life.
2] symptoms do not wait until you have stopped the drug they also appear if tapered too quickly (below about 10mg a day in my case).

On a personal note I would have liked hyperlinks and references but maybe I'm just becoming too pedantic.
mentalhealthdaily.com/2014/06/10/prednisone-withdrawal-symptoms-how-long-do-they-last/
The following user(s) said Thank You: Hal9000
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8 years 3 months ago #59642 by poseymint
Replied by poseymint on topic Excellent article explaining steroid withdrawal symptoms
Good article- its very clear and contains a good list of withdrawal symptoms. I've had quite a few on the list! I think I was on prednisone for about a year last time. It took about 6 mos after I tapered to zero to feel somewhat normal. I could stay up from morning to night without getting fatigued, sleepy and wanting to nap. And even after 6mos I could feel fatigued and achy again if I was under emotional or physical stress (staying up too late, working too many hours, working out at the gym). Thanks for sharing the article! Its important information.

By the way, how are you doing MrsB? How is the taper going and platelet count? Hope you are not having too bad a time with withdrawal.
The following user(s) said Thank You: mrsb04
  • mrsb04
  • Topic Author
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
8 years 3 months ago #59645 by mrsb04
Replied by mrsb04 on topic Excellent article explaining steroid withdrawal symptoms
Thanks Posey
Latest count was 47.
I'm still taking it very gently down to 4.5mg a day this week. No disastrous withdrawal symptoms so far, a bit weary & legs ache if I'm on my feet too long but very supportive colleagues so I get a quick sit down if I need one plus I get a full 1 hour break in the middle of my shift where I go for a lie down. I'm having a lie down most days in the early afternoon for about an hour when I'm not at work and spending more time than I would like on the sofa during the day but it's worth it to get off the wretched stuff.
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8 years 3 months ago - 8 years 3 months ago #59647 by poseymint
Replied by poseymint on topic Excellent article explaining steroid withdrawal symptoms
Good counts! woo hoo! My count on Nplate today was 42- we are on target. You are really doing the taper the right way, very sensibly taking it slow and easy. I liked that your article mentioned tremors as a withdrawal symptom. I think I had a sense of trembling and a slight shaking in my hands. But after I got down to 2.5mg I felt a sense of calmness so thats nice. I've read other forums where people talk about tapering steroids and they suffer so terribly. Its almost always due to tapering too fast. Sometimes its the doctor who doesn't understand slow tapering, sometimes the patient thinks they'll feel better it they just get off the drug quickly. thanks for the update and article! great you have good support at work!
The following user(s) said Thank You: mrsb04
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