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ITP and RA

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9 years 1 month ago #57540 by Julieweberrealtor
ITP and RA was created by Julieweberrealtor
Has anyone here been diagnosed and treated for Rheumatoid Arthritis and ITP. I'm scared about the Rituxan my Dr. Is basically telling me my only option available is. If anyone has experience with this can you please share.

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9 years 1 month ago #57541 by Barb111
Replied by Barb111 on topic ITP and RA
I know it is widely used for RA and now ITP. I had it myself with no difficulty although there are many possible side effects. But, as my doctor told me, there are potentially fatal side effects to lots of medications. Just listen to the TV when they advertise meds. They list everything under the sun. Seizures, strokes, death....talk to your doctor and come to a decision on what you can feel good about. The risk outweighed the possibilities for me.

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  • D.Mann
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  • Diagnosed October 2016 Steroids, IVIG, Rituxin, Promacta, Spleen removed, Rituxin again. Currently weaning off Promacta and Prednisone.
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9 years 1 month ago #57542 by D.Mann
Replied by D.Mann on topic ITP and RA
Just finished Rituxan. I had an itchy thoat during the first dose. Was given Benadryl and all was good. No issues with the other 3 doses.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 1 month ago #57544 by Sandi
Replied by Sandi on topic ITP and RA
It is not uncommon to be diagnosed with more than one autoimmune disorder. Quite a few of us have two or more.

What else have you tied? There are always other options.

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9 years 1 month ago #57547 by jeffrey71
Replied by jeffrey71 on topic ITP and RA
Hi there!

I too have ITP and RA. I am doing nothing. My counts are typically 22k. My RA hurts, especially in my lower back and shoulders. I try to eat right and not to aggravate my body by eating and taking things that I really don't need.

I do realize that someday the pain will become not so manageable but for now it works.

Please keep me posted on your journey. I would like to know about the RA path you take.

thanks!

Jeffrey

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.