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Kimberly's Chemo update

  • A Clow
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  • I am a father a three children. My wife and I have already lost one child to ITP in 1995. Our youngest Kimberly now 35, has chronic ITP with a hyper coagulation condition as well.
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9 years 3 months ago #56234 by A Clow
Kimberly's Chemo update was created by A Clow
Well it will be four weeks since Kimberly's last dose of Cytoxan, and the results are very promising. Her platelets have been at a low of 287K and a high now of 580K. White count 12.2, HMG 10.2 everything seems to be holding well. Two doses of growth factors ( neupogen and lunesta, nasty stuff ) to keep the white count up but all in all things are looking great. Tapering the steroids down now to 30mgs daily and hopefully as the weeks progress, she'll be off them entirely. She is loosing her hair, but that's a small price to pay. She took control and had her hair cut in a pixie cut. Thought it might fall out a bit slower. Personally I think it looks better short, but she looked great with long hair also. Hey I'm her Dad. I might be a bit bias.

So a big thumbs up. There just might be a light at the end of this tunnel after all.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 3 months ago #56236 by Sandi
Replied by Sandi on topic Kimberly's Chemo update
This is nice to hear! This is only the second time ever that I have seen Cytoxan actually work for ITP. Fingers crossed for lasting results!

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Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.