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CellCept side effects?

  • amberyard
  • Topic Author
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  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
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9 years 6 months ago #54916 by amberyard
CellCept side effects? was created by amberyard
Starting cellcept on Tuesday and just want to know what to watch for.

Thanks

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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9 years 6 months ago #54917 by mrsb04
Replied by mrsb04 on topic CellCept side effects?
I hope it works for you Amber. I tried it starting at Igm a day. No response to that so dose increased. After 2 months on 2gm a day when I'd actually had 2 counts over 50 in the whole period I was so low in mood with a count of 32 that I came off it.

Apart from it affecting my mood I had no other side effects.
Anne

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  • Melinda
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9 years 6 months ago - 9 years 6 months ago #54918 by Melinda
Replied by Melinda on topic CellCept side effects?
If you post this in the Treatment-General section you will probably get more answers - this is the forum information section that is questions about the forum not ITP so a lot don't come here usually.

Is this the drug that can cause neuropathy?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 6 months ago #54923 by Sandi
Replied by Sandi on topic CellCept side effects?
I tried it for Lupus and couldn't think straight. I felt like my mind went blank...couldn't function at my job so had to quit taking it.
The following user(s) said Thank You: amberyard

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Platelet Disorder Support Association

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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.